Maryland 2022 Regular Session

Maryland House Bill HB1176 Compare Versions

Only one version of the bill is available at this time.

Old	New	Differences
1	1
2	2
3	3	EXPLANATION: CAPITALS INDICATE MAT TER ADDED TO EXISTIN G LAW.
4	4	[Brackets] indicate matter deleted from existing law.
5	5	hb1176
6	6
7	7	HOUSE BILL 1176
8	8	J1 2lr2494
9	9	CF SB 859
10	10	By: Delegate McComas
11	11	Introduced and read first time: February 11, 2022
12	12	Assigned to: Health and Government Operations
13	13
14	14	A BILL ENTITLED
15	15
16	16	AN ACT concerning 1
17	17
18	18	Public Health – Sickle Cell Disease Registry – Establishment 2
19	19
20	20	FOR the purpose of requiring the Maryland Department of Health to establish and 3
21	21	maintain a registry of individuals diagnosed with sickle cell disease for a certain 4
22	22	purpose; requiring the Department to periodically publish information identifying 5
23	23	areas with statistically high populations of individuals with sickle cell disease; and 6
24	24	generally relating to a sickle cell disease registry. 7
25	25
26	26	BY adding to 8
27	27	Article – Health – General 9
28	28	Section 18–508 10
29	29	Annotated Code of Maryland 11
30	30	(2019 Replacement Volume and 2021 Supplement) 12
31	31
32	32	SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND, 13
33	33	That the Laws of Maryland read as follows: 14
34	34
35	35	Article – Health – General 15
36	36
37	37	18–508. 16
38	38
39	39	(A) THE DEPARTMENT SHALL ESTA BLISH AND MAINTAIN A REGISTRY OF 17
40	40	INDIVIDUALS DIAGNOSE D WITH SICKLE CELL D ISEASE FOR USE AS A SINGLE 18
41	41	REPOSITORY OF ACCURA TE, COMPLETE RECORDS TO AID IN PROMOTING THE SITING 19
42	42	OF THE FOLLOWING HEALTH CARE PROVIDERS IN AR EAS WITH STATISTICALL Y HIGH 20
43	43	POPULATIONS OF INDIV IDUALS WITH SICKLE C ELL DISEASE: 21
44	44
45	45	(1) HEALTH CARE FACILITIE S THAT PROVIDE INFUSION THE RAPY; 22
46	46	AND 23
47	47	2 HOUSE BILL 1176
48	48
49	49
50	50	(2) HEMATOLOGIST OFFICES. 1
51	51
52	52	(B) THE SICKLE CELL DISEA SE REGISTRY ESTABLIS HED UNDER 2
53	53	SUBSECTION (A) OF THIS SECTION SHALL INCLUD E: 3
54	54
55	55	(1) A RECORD OF INDIVIDUAL S IN THE STATE WHO HAVE BEEN 4
56	56	DIAGNOSED WITH SICKL E CELL DISEASE; AND 5
57	57
58	58	(2) ANY OTHER INFORMATION REGARDING INDIVIDUAL S WHO HAVE 6
59	59	BEEN DIAGNOSED WITH SICKLE CELL DISEASE THAT THE DEPARTMENT CONSIDERS 7
60	60	NECESSARY AND APPROPRIATE FOR INCLUSION ON THE REGISTRY. 8
61	61
62	62	(C) (1) THE DEPARTMENT SHALL ESTA BLISH A PROCESS AND 9
63	63	GUIDELINES FOR : 10
64	64
65	65	(I) OBTAINING INFORMATION REGARDING AN INDIVID UAL 11
66	66	DIAGNOSED WITH SICKL E CELL DISEASE FROM HEALTH CARE FACILITI ES FOR USE 12
67	67	IN THE REGISTRY; AND 13
68	68
69	69	(II) ENSURING THAT THE REG ISTRY AND THE PROCESS OF 14
70	70	OBTAINING INFORMATION FOR THE REGISTRY COMPLY WITH THE REQUIREMENT S 15
71	71	OF § 18–504 OF THIS SUBTITLE , § 13–109 OF THIS ARTICLE , THE HEALTH 16
72	72	INSURANCE PORTABILITY AND ACCOUNTABI LITY ACT OF 1996, AND ANY OTHER 17
73	73	APPLICABLE PRIVACY L AW. 18
74	74
75	75	(2) THE DEPARTMENT MAY USE AN Y AVAILABLE SOURCES OF DATA 19
76	76	FOR THE REGISTRY OR AS PART OF THE PROCE SS AND GUIDELINES ES TABLISHED 20
77	77	UNDER PARAGRAPH (1) OF THIS SUBSECTION , INCLUDING: 21
78	78
79	79	(I) DATA FROM T HE DESIGNATED HEALTH INFORMATION 22
80	80	EXCHANGE IN THE STATE; 23
81	81
82	82	(II) CENSUS–TRACT LEVEL DATA ; AND 24
83	83
84	84	(III) INFORMATION COLLECTED FROM VITAL RECORDS . 25
85	85
86	86	(D) A HEALTH CARE PROVIDER WHO PROVIDES HEALTH CARE TO AN 26
87	87	INDIVIDUAL WITH SICKLE CELL DIS EASE SHALL PROVIDE TO THE DEPARTMENT ANY 27
88	88	INFORMATION IN THE F ORM AND MANNER REQUIRED BY THE GUIDELINES 28
89	89	ESTABLISHED UNDER SUBSECTION (C) OF THIS SECTION. 29
90	90
91	91	(E) TO THE EXTENT AUTHORI ZED BY LAW , THE DEPARTMENT SHALL 30
92	92	PERIODICALLY PUBLISH INFORMATION IDENTIFY ING AREAS WITH STATI STICALLY 31 HOUSE BILL 1176 3
93	93
94	94
95	95	HIGH POPULATIONS OF INDIVIDUALS WITH SIC KLE CELL DISEASE , WHICH MAY 1
96	96	INCLUDE INFORMATION PUBLISHED IN A MAP . 2
97	97
98	98	SECTION 2. AND BE IT FURTHER ENACTED, That this Act shall take effect 3
99	99	October 1, 2022. 4