EXPLANATION: CAPITALS INDICATE MAT TER ADDED TO EXISTIN G LAW.
[Brackets] indicate matter deleted from existing law.
*hb1176*
HOUSE BILL 1176
J1 2lr2494
CF SB 859
By: Delegate McComas
Introduced and read first time: February 11, 2022
Assigned to: Health and Government Operations
A BILL ENTITLED
AN ACT concerning 1
Public Health – Sickle Cell Disease Registry – Establishment 2
FOR the purpose of requiring the Maryland Department of Health to establish and 3
maintain a registry of individuals diagnosed with sickle cell disease for a certain 4
purpose; requiring the Department to periodically publish information identifying 5
areas with statistically high populations of individuals with sickle cell disease; and 6
generally relating to a sickle cell disease registry. 7
BY adding to 8
Article – Health – General 9
Section 18–508 10
Annotated Code of Maryland 11
(2019 Replacement Volume and 2021 Supplement) 12
SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND, 13
That the Laws of Maryland read as follows: 14
Article – Health – General 15
18–508. 16
(A) THE DEPARTMENT SHALL ESTA BLISH AND MAINTAIN A REGISTRY OF 17
INDIVIDUALS DIAGNOSE D WITH SICKLE CELL D ISEASE FOR USE AS A SINGLE 18
REPOSITORY OF ACCURA TE, COMPLETE RECORDS TO AID IN PROMOTING THE SITING 19
OF THE FOLLOWING HEALTH CARE PROVIDERS IN AR EAS WITH STATISTICALL Y HIGH 20
POPULATIONS OF INDIV IDUALS WITH SICKLE C ELL DISEASE: 21
(1) HEALTH CARE FACILITIE S THAT PROVIDE INFUSION THE RAPY; 22
AND 23
2 HOUSE BILL 1176
(2) HEMATOLOGIST OFFICES. 1
(B) THE SICKLE CELL DISEA SE REGISTRY ESTABLIS HED UNDER 2
SUBSECTION (A) OF THIS SECTION SHALL INCLUD E: 3
(1) A RECORD OF INDIVIDUAL S IN THE STATE WHO HAVE BEEN 4
DIAGNOSED WITH SICKL E CELL DISEASE; AND 5
(2) ANY OTHER INFORMATION REGARDING INDIVIDUAL S WHO HAVE 6
BEEN DIAGNOSED WITH SICKLE CELL DISEASE THAT THE DEPARTMENT CONSIDERS 7
NECESSARY AND APPROPRIATE FOR INCLUSION ON THE REGISTRY. 8
(C) (1) THE DEPARTMENT SHALL ESTA BLISH A PROCESS AND 9
GUIDELINES FOR : 10
(I) OBTAINING INFORMATION REGARDING AN INDIVID UAL 11
DIAGNOSED WITH SICKL E CELL DISEASE FROM HEALTH CARE FACILITI ES FOR USE 12
IN THE REGISTRY; AND 13
(II) ENSURING THAT THE REG ISTRY AND THE PROCESS OF 14
OBTAINING INFORMATION FOR THE REGISTRY COMPLY WITH THE REQUIREMENT S 15
OF § 18–504 OF THIS SUBTITLE , § 13–109 OF THIS ARTICLE , THE HEALTH 16
INSURANCE PORTABILITY AND ACCOUNTABI LITY ACT OF 1996, AND ANY OTHER 17
APPLICABLE PRIVACY L AW. 18
(2) THE DEPARTMENT MAY USE AN Y AVAILABLE SOURCES OF DATA 19
FOR THE REGISTRY OR AS PART OF THE PROCE SS AND GUIDELINES ES TABLISHED 20
UNDER PARAGRAPH (1) OF THIS SUBSECTION , INCLUDING: 21
(I) DATA FROM T HE DESIGNATED HEALTH INFORMATION 22
EXCHANGE IN THE STATE; 23
(II) CENSUS–TRACT LEVEL DATA ; AND 24
(III) INFORMATION COLLECTED FROM VITAL RECORDS . 25
(D) A HEALTH CARE PROVIDER WHO PROVIDES HEALTH CARE TO AN 26
INDIVIDUAL WITH SICKLE CELL DIS EASE SHALL PROVIDE TO THE DEPARTMENT ANY 27
INFORMATION IN THE F ORM AND MANNER REQUIRED BY THE GUIDELINES 28
ESTABLISHED UNDER SUBSECTION (C) OF THIS SECTION. 29
(E) TO THE EXTENT AUTHORI ZED BY LAW , THE DEPARTMENT SHALL 30
PERIODICALLY PUBLISH INFORMATION IDENTIFY ING AREAS WITH STATI STICALLY 31 HOUSE BILL 1176 3
HIGH POPULATIONS OF INDIVIDUALS WITH SIC KLE CELL DISEASE , WHICH MAY 1
INCLUDE INFORMATION PUBLISHED IN A MAP . 2
SECTION 2. AND BE IT FURTHER ENACTED, That this Act shall take effect 3
October 1, 2022. 4