MD
Maryland Senate Bill SB859

Maryland 2022 Regular Session

Maryland Senate Bill SB859 Compare Versions

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1- LAWRENCE J. HOGAN, JR., Governor Ch. 280
21
3-– 1 –
4-Chapter 280
5-(Senate Bill 859)
62
7-AN ACT concerning
3+EXPLANATION: CAPITALS INDICATE MAT TER ADDED TO EXISTIN G LAW.
4+ [Brackets] indicate matter deleted from existing law.
5+ Underlining indicates amendments to bill.
6+ Strike out indicates matter stricken from the bill by amendment or deleted from the law by
7+amendment.
8+ Italics indicate opposite chamber/conference committee amendments.
9+ *sb0859*
810
9-Public Health – Sickle Cell Disease Registry – Establishment
11+SENATE BILL 859
12+J1 (2lr2941)
13+ENROLLED BILL
14+— Finance/Health and Government Operations —
15+Introduced by Senator Watson
1016
11-FOR the purpose of requiring the Maryland Department of Health to establish and
12-maintain a registry of individuals diagnosed with sickle cell disease for a certain
13-purpose; requiring the Department to periodically publish information identifying
14-areas with statistically high populations of individuals with sickle cell disease
15-renaming the Statewide Steering Committee on Services for Adults with Sickle Cell
16-Disease to be the Statewide Steering Committee on Sickle Cell Disease; requiring the
17-Maryland Department of Health to establish and implement a system of providing
18-information on the sickle cell trait or the thalassemia trait to certain individuals;
19-requiring the Department to maintain on its website a certain list of resources for
20-health care practitioners and establish a plan for updating its website to meet certain
21-requirements; and generally relating to a sickle cell disease registry.
17+Read and Examined by Proofreaders:
2218
23-BY repealing and reenacting, with amendments,
24- Article – Health – General
25- Section 18–506 and 18–507
26- Annotated Code of Maryland
27- (2019 Replacement Volume and 2021 Supplement)
19+_______________________________________________
20+Proofreader.
21+_______________________________________________
22+Proofreader.
2823
29-BY adding to
30- Article – Health – General
31-Section 18–508 and 18–509
32- Annotated Code of Maryland
33- (2019 Replacement Volume and 2021 Supplement)
24+Sealed with the Great Seal and presented to the Governor, for his approval this
3425
35- SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND,
36-That the Laws of Maryland read as follows:
26+_______ day of _______________ at _________________ _______ o’clock, ________M.
3727
38-Article – Health – General
28+______________________________________________
29+President.
3930
40-18–506.
31+CHAPTER ______
4132
42- (a) In this section, “Steering Committee” means the Statewide Steering Committee
43-on [Services for Adults with] Sickle Cell Disease.
33+AN ACT concerning 1
4434
45- (b) There is a Statewide Steering Committee on [Services for Adults with] Sickle
46-Cell Disease.
35+Public Health – Sickle Cell Disease Registry – Establishment 2
4736
48- (c) The Steering Committee shall include representatives from: Ch. 280 2022 LAWS OF MARYLAND
37+FOR the purpose of requiring the Maryland Department of Health to establish and 3
38+maintain a registry of individuals diagnosed with sickle cell disease for a certain 4
39+purpose; requiring the Department to periodically publish information identifying 5
40+areas with statistically high populations of individuals with sickle cell disease 6
41+renaming the Statewide Steering Committee on Services for Adults with Sickle Cell 7
42+Disease to be the Statewide Steering Committee on Sickle Cell Disease; requiring the 8
43+Maryland Department of Health to establish and implement a system of providing 9
44+information on the sickle cell trait or the thalassemia trait to certain individuals; 10
45+requiring the Department to maintain on its website a certain list of resources for 11
46+health care practitioners and establish a plan for updating its website to meet certain 12
47+requirements; and generally relating to a sickle cell disease registry. 13
4948
50-– 2 –
49+BY repealing and reenacting, with amendments, 14 2 SENATE BILL 859
5150
52- (1) Local and national groups that advocate for individuals with sickle cell
53-disease;
5451
55- (2) Interest and support groups for individuals with sickle cell disease;
52+ Article – Health – General 1
53+ Section 18–506 and 18–507 2
54+ Annotated Code of Maryland 3
55+ (2019 Replacement Volume and 2021 Supplement) 4
5656
57- (3) Community and consumer groups;
57+BY adding to 5
58+ Article – Health – General 6
59+Section 18–508 and 18–509 7
60+ Annotated Code of Maryland 8
61+ (2019 Replacement Volume and 2021 Supplement) 9
5862
59- (4) Academic and private clinical settings with knowledge and experience
60-caring for adults with sickle cell disease;
63+ SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF MARYLAND, 10
64+That the Laws of Maryland read as follows: 11
6165
62- (5) Area hospitals caring for individuals with sickle cell disease; and
66+Article – Health – General 12
6367
64- (6) Pediatric clinics that care for children with sickle cell disease.
68+18–506. 13
6569
66- (d) The Steering Committee shall:
70+ (a) In this section, “Steering Committee” means the Statewide Steering Committee 14
71+on [Services for Adults with] Sickle Cell Disease. 15
6772
68- (1) Establish institution and community partnerships;
73+ (b) There is a Statewide Steering Committee on [Services for Adults with] Sickle 16
74+Cell Disease. 17
6975
70- (2) Establish a statewide network of stakeholders who care for individuals
71-with sickle cell disease;
76+ (c) The Steering Committee shall include representatives from: 18
7277
73- (3) Educate individuals with sickle cell disease, the public, and health care
74-providers about the State options for care of sickle cell disease; and
78+ (1) Local and national groups that advocate for individuals with sickle cell 19
79+disease; 20
7580
76- (4) Identify funding sources for implementing or supporting the actions,
77-studies, policies, regulations, or laws recommended by the Steering Committee, including
78-funding from:
81+ (2) Interest and support groups for individuals with sickle cell disease; 21
7982
80- (i) State, federal, and local government sources; and
83+ (3) Community and consumer groups; 22
8184
82- (ii) Private sources.
85+ (4) Academic and private clinical settings with knowledge and experience 23
86+caring for adults with sickle cell disease; 24
8387
84-18–507.
88+ (5) Area hospitals caring for individuals with sickle cell disease; and 25
8589
86- (a) The Department may, in consultation with the Statewide Steering Committee
87-on [Services for Adults with] Sickle Cell Disease, provide services relating to sickle cell
88-disease, including:
90+ (6) Pediatric clinics that care for children with sickle cell disease. 26
8991
90- (1) Educational programs on sickle cell disease for individuals affected by
91-the disease, including:
92+ (d) The Steering Committee shall: 27
9293
93- (i) Individuals with sickle cell disease;
94+ (1) Establish institution and community partnerships; 28
9495
95- (ii) Families of individuals with sickle cell disease;
96- LAWRENCE J. HOGAN, JR., Governor Ch. 280
96+ (2) Establish a statewide network of stakeholders who care for individuals 29
97+with sickle cell disease; 30
98+ SENATE BILL 859 3
9799
98-– 3 –
99- (iii) Caregivers of individuals with sickle cell disease;
100100
101- (iv) Employees at primary and secondary schools; and
101+ (3) Educate individuals with sickle cell disease, the public, and health care 1
102+providers about the State options for care of sickle cell disease; and 2
102103
103- (v) Health care providers;
104+ (4) Identify funding sources for implementing or supporting the actions, 3
105+studies, policies, regulations, or laws recommended by the Steering Committee, including 4
106+funding from: 5
104107
105- (2) Social services support to individuals with sickle cell disease, including
106-support from social workers and community health workers to provide information on
107-services that may be available to the individual;
108+ (i) State, federal, and local government sources; and 6
108109
109- (3) Testing;
110+ (ii) Private sources. 7
110111
111- (4) Genetic counseling;
112+18–507. 8
112113
113- (5) Assistance with any available reimbursement for medical expenses
114-related to sickle cell disease;
114+ (a) The Department may, in consultation with the Statewide Steering Committee 9
115+on [Services for Adults with] Sickle Cell Disease, provide services relating to sickle cell 10
116+disease, including: 11
115117
116- (6) Education and counseling services after the receipt of sickle cell trait test
117-results from the State’s Newborn Screening Program; and
118+ (1) Educational programs on sickle cell disease for individuals affected by 12
119+the disease, including: 13
118120
119- (7) Any other programs or services that are necessary to decrease the use of
120-acute care services by individuals who have sickle cell disease.
121+ (i) Individuals with sickle cell disease; 14
121122
122- (b) The Department shall provide the services in subsection (a) of this section
123-through community–based organizations to the extent practicable.
123+ (ii) Families of individuals with sickle cell disease; 15
124124
125-18–508.
125+ (iii) Caregivers of individuals with sickle cell disease; 16
126126
127- (A) THE DEPARTMENT SHALL ESTA BLISH AND MAINTAIN A REGISTRY OF
128-INDIVIDUALS DIAGNOSE D WITH SICKLE CELL D ISEASE FOR USE AS A SINGLE
129-REPOSITORY OF ACCURA TE, COMPLETE RECORDS TO AID IN PROMOTING THE SITING
130-OF THE FOLLOWING HEA LTH CARE PROVIDERS I N AREAS WITH STATIST ICALLY HIGH
131-POPULATIONS OF INDIV IDUALS WITH SICKLE C ELL DISEASE:
127+ (iv) Employees at primary and secondary schools; and 17
132128
133- (1) HEALTH CARE FACILITIE S THAT PROVIDE INFUS ION THERAPY ;
134-AND
129+ (v) Health care providers; 18
135130
136- (2) HEMATOLOGIST OFFICES .
131+ (2) Social services support to individuals with sickle cell disease, including 19
132+support from social workers and community health workers to provide information on 20
133+services that may be available to the individual; 21
137134
138- (B) THE SICKLE CELL DISEA SE REGISTRY ESTABLIS HED UNDER
139-SUBSECTION (A) OF THIS SECTION SHAL L INCLUDE:
135+ (3) Testing; 22
140136
141- (1) A RECORD OF INDIVIDUAL S IN THE STATE WHO HAVE BEEN
142-DIAGNOSED WITH SICKL E CELL DISEASE; AND
143- Ch. 280 2022 LAWS OF MARYLAND
137+ (4) Genetic counseling; 23
144138
145-– 4 –
146- (2) ANY OTHER INFORMATION REGARDING INDIVIDUAL S WHO HAVE
147-BEEN DIAGNOSED WITH SICKLE CELL DISEASE THAT THE DEPARTMENT CONSIDERS
148-NECESSARY AND APPROP RIATE FOR INCLUSION ON THE REGISTRY.
139+ (5) Assistance with any available reimbursement for medical expenses 24
140+related to sickle cell disease; 25
149141
150- (C) (1) THE DEPARTMENT SHALL ESTA BLISH A PROCESS AND
151-GUIDELINES FOR :
142+ (6) Education and counseling services after the receipt of sickle cell trait test 26
143+results from the State’s Newborn Screening Program; and 27
152144
153- (I) OBTAINING INFORMATION REGARDING AN INDIVID UAL
154-DIAGNOSED WITH SICKL E CELL DISEASE FROM HEALTH CARE FACILITI ES FOR USE
155-IN THE REGISTRY; AND
145+ (7) Any other programs or services that are necessary to decrease the use of 28
146+acute care services by individuals who have sickle cell disease. 29
147+ 4 SENATE BILL 859
156148
157- (II) ENSURING THAT THE REG ISTRY AND THE PROCES S OF
158-OBTAINING INFORMATIO N FOR THE REGISTRY C OMPLY WITH THE REQUI REMENTS
159-OF § 18–504 OF THIS SUBTITLE , § 13–109 OF THIS ARTICLE , THE HEALTH
160-INSURANCE PORTABILITY AND ACCOUNTABILITY ACT OF 1996, AND ANY OTHER
161-APPLICABLE PRIVACY LAW ; AND
162149
163- (III) INTEGRATING THE REGIS TRY WITH THE
164-STATE–DESIGNATED HEALTH IN FORMATION EXCHANGE .
150+ (b) The Department shall provide the services in subsection (a) of this section 1
151+through community–based organizations to the extent practicable. 2
165152
166- (2) THE DEPARTMENT MAY USE AN Y AVAILABLE SOURCES OF DATA
167-FOR THE REGISTRY OR AS PART OF THE PROCE SS AND GUIDELINES ES TABLISHED
168-UNDER PARAGRAPH (1) OF THIS SUBSECTION , INCLUDING:
153+18–508. 3
169154
170- (I) DATA FROM THE DESIGNA TED HEALTH INFORMATION
171-EXCHANGE IN THE STATE;
155+ (A) THE DEPARTMENT SHALL ESTA BLISH AND MAINTAIN A REGISTRY OF 4
156+INDIVIDUALS DIAGNOSE D WITH SICKLE CELL D ISEASE FOR USE AS A SINGLE 5
157+REPOSITORY OF ACCURA TE, COMPLETE RECORDS TO AID IN PROMOTING THE SITING 6
158+OF THE FOLLOWING HEA LTH CARE PROVIDERS I N AREAS WITH STATISTICALLY HIGH 7
159+POPULATIONS OF INDIV IDUALS WITH SICKLE C ELL DISEASE: 8
172160
173- (II) CENSUS–TRACT LEVEL DATA ; AND
161+ (1) HEALTH CARE FACILITIE S THAT PROVIDE INFUS ION THERAPY ; 9
162+AND 10
174163
175- (III) INFORMATION COLLECTED FROM VITAL RECORDS .
164+ (2) HEMATOLOGIST OFFICES . 11
176165
177- (D) A HEALTH CARE PROVIDER WHO PROVIDES HEALTH CARE TO AN
178-INDIVIDUAL WITH SICK LE CELL DISEASE SHAL L PROVIDE TO THE DEPARTMENT ANY
179-INFORMATION IN THE F ORM AND MANNER REQUI RED BY THE GUIDELINE S
180-ESTABLISHED UNDER SU BSECTION (C) OF THIS SECTION.
166+ (B) THE SICKLE CELL DISEA SE REGISTRY ESTABLIS HED UNDER 12
167+SUBSECTION (A) OF THIS SECTION SH ALL INCLUDE: 13
181168
182- (E) TO THE EXTENT AUTHORI ZED BY LAW , THE DEPARTMENT SHALL
183-PERIODICALLY PUBLISH INFORMATION IDENTIFY ING AREAS WITH STATI STICALLY
184-HIGH POPULATIONS OF INDIVIDUALS WITH SIC KLE CELL DISEASE , WHICH MAY
185-INCLUDE INFORMATION PUBLISHED IN A MAP .
169+ (1) A RECORD OF INDIVIDUAL S IN THE STATE WHO HAVE BEEN 14
170+DIAGNOSED WITH SICKL E CELL DISEASE; AND 15
186171
187- (A) THE DEPARTMENT , IN CONSULTATION WITH THE STATEWIDE STEERING
188-COMMITTEE ON SICKLE CELL DISEASE, SHALL ESTABLISH AND IMPLEMENT A LAWRENCE J. HOGAN, JR., Governor Ch. 280
172+ (2) ANY OTHER INFORMATION REGARDING INDIVIDUAL S WHO HAVE 16
173+BEEN DIAGNOSED WITH SICKLE CELL DISEASE THAT THE DEPARTMENT CONSIDERS 17
174+NECESSARY AND APPROPRIATE FOR INCL USION ON THE REGISTR Y. 18
189175
190-– 5 –
191-SYSTEM OF PROVIDING INFORMATION ON THE S ICKLE CELL TRAIT OR THE
192-THALASSEMIA TRAIT TO :
176+ (C) (1) THE DEPARTMENT SHALL ESTA BLISH A PROCESS AND 19
177+GUIDELINES FOR : 20
193178
194- (1) AN INDIVIDUAL WHO HAS THE SICKLE CELL TRAI T OR THE
195-THALASSEMIA TRAIT , INCLUDING AS DETERMI NED THR OUGH A NEWBORN
196-SCREENING UNDER § 18–502 OF THIS SUBTITLE; AND
179+ (I) OBTAINING INFORMATION REGARDING AN INDIVID UAL 21
180+DIAGNOSED WITH SICKL E CELL DISEASE FROM HEALTH CARE FACILITI ES FOR USE 22
181+IN THE REGISTRY; AND 23
197182
198- (2) IF THE INDIVIDUAL IS A MINOR, THE INDIVIDUAL’S FAMILY.
183+ (II) ENSURING THAT THE REG ISTRY AND THE PROCES S OF 24
184+OBTAINING INFORMATIO N FOR THE REGISTRY C OMPLY WITH THE REQUI REMENTS 25
185+OF § 18–504 OF THIS SUBTITLE , § 13–109 OF THIS ARTICLE , THE HEALTH 26
186+INSURANCE PORTABILITY AND ACCOUNTABILITY ACT OF 1996, AND ANY OTHER 27
187+APPLICABLE PRIVACY L AW; AND 28
199188
200- (B) THE DEPARTMENT SHALL INCL UDE THE FOLLOWING IN THE
201-INFORMATION PROVIDED UNDER SUBSECTION (A) OF THIS SECTION:
189+ (III) INTEGRATING THE REGIS TRY WITH THE 29
190+STATE–DESIGNATED HEALTH IN FORMATION EXCHANGE . 30
191+ SENATE BILL 859 5
202192
203- (1) HOW THE SI CKLE CELL TRAIT OR T HE THALASSEMIA TRAIT
204-IMPACTS THE HEALTH O F AN INDIVIDUAL WITH THE TRAIT; AND
205193
206- (2) HOW THE SICKLE CELL T RAIT OR THE THALASSE MIA TRAIT IS
207-PASSED FROM A PARENT TO A CHILD.
194+ (2) THE DEPARTMENT MAY USE AN Y AVAILABLE SOURCES OF DATA 1
195+FOR THE REGISTRY OR AS PART OF THE PROCE SS AND GUIDELINES ES TABLISHED 2
196+UNDER PARAGRAPH (1) OF THIS SUBSECTION , INCLUDING: 3
208197
209-18–509.
198+ (I) DATA FROM THE DESIGNA TED HEALTH INFORMATION 4
199+EXCHANGE IN THE STATE; 5
210200
211- THE DEPARTMENT SHALL MAIN TAIN IN A CONSPICUOU S LOCATION ON ITS
212-WEBSITE A LIST OF RE SOURCES FOR HEALTH C ARE PRACTITIONERS TO USE TO
213-IMPROVE THEIR UNDERS TANDING AND CLINICAL TREATMENT OF INDIVID UALS WITH
214-SICKLE CELL DISEASE OR THE SICKLE CELL T RAIT, INCLUDING INFORMATIO N ON
215-THE HEALTH IMPACTS O F CARRYING THE SI CKLE CELL TRAIT.
201+ (II) CENSUS–TRACT LEVEL DATA ; AND 6
216202
217- SECTION 2. AND BE IT FURTHER ENACTED, That, on or before April 1, 2023,
218-the Maryland Department of Health shall establish a plan to update its website to reflect the
219-information required under § 18–509 of the Health – General Article, as enacted by Section
220-1 of this Act, including a timeline for when the updates will be available on the website.
203+ (III) INFORMATION COLLECTED FROM VITAL RECORDS . 7
221204
222- SECTION 3. AND BE IT FURTHER ENACTED, That:
205+ (D) A HEALTH CARE PROVIDER WHO PROVIDES HEALTH CARE TO AN 8
206+INDIVIDUAL WITH SICK LE CELL DISEASE SHAL L PROVIDE TO THE DEPARTMENT ANY 9
207+INFORMATION IN THE F ORM AND MANNER REQUI RED BY THE GUIDELINE S 10
208+ESTABLISHED UNDER SU BSECTION (C) OF THIS SECTION. 11
223209
224- (a) The Statewide Steering Committee on Sickle Cell Disease, in conjunction with
225-the Maryland Department of Health and other relevant stakeholders, shall study and make
226-recommendations on:
210+ (E) TO THE EXTENT AUTHORI ZED BY LAW , THE DEPARTMENT SHALL 12
211+PERIODICALLY PUBLISH INFORMATION IDENTIFY ING AREAS WITH STATI STICALLY 13
212+HIGH POPULATIONS OF INDIVIDUALS WITH SIC KLE CELL DISEASE , WHICH MAY 14
213+INCLUDE INFORMATION PUBLISHED IN A MAP . 15
227214
228- (1) how to enhance access to services for individuals with sickle cell disease
229-with a focus on areas of the State where there is a statistically high number of individuals
230-with sickle cell disease and areas where there is a lack of providers with expertise in treating
231-sickle cell disease;
215+ (A) THE DEPARTMENT , IN CONSULTATION WITH THE STATEWIDE STEERING 16
216+COMMITTEE ON SICKLE CELL DISEASE, SHALL ESTABLISH AND IMPLEMENT A 17
217+SYSTEM OF PROVIDING INFORMATION ON THE S ICKLE CELL TRAIT OR THE 18
218+THALASSEMIA TRAIT TO : 19
232219
233- (2) whether to establish a sickle cell disease registry, and if recommended,
234-the process and guidelines for establishing a registry, obtaining information, connecting
235-with the State designated exchange, and protecting data privacy; Ch. 280 2022 LAWS OF MARYLAND
220+ (1) AN INDIVIDUAL WHO HAS THE SICKLE CELL TRAI T OR THE 20
221+THALASSEMIA TRAIT , INCLUDING AS DETER MINED THROUGH A NEWB ORN 21
222+SCREENING UNDER § 18–502 OF THIS SUBTITLE; AND 22
236223
237-– 6 –
224+ (2) IF THE INDIVIDUAL IS A MINOR, THE INDIVIDUAL’S FAMILY. 23
238225
239- (3) how to enhance the coordination of health care services for individuals
240-with sickle cell disease who are transitioning from pediatric to adult health care in the State
241-including the identification of available resources for individuals who are transitioning; and
226+ (B) THE DEPARTMENT SHALL INCL UDE THE FOLLOWING IN THE 24
227+INFORMATION PROVIDED UNDER SUBSECTION (A) OF THIS SECTION: 25
242228
243- (4) how to engage with community –based health fairs and other
244-community–sponsored events in areas with a statistically high number of individuals with
245-sickle cell disease to provide outreach and education on living with sickle cell disease and
246-how to access health care services.
229+ (1) HOW THE SICKLE CELL T RAIT OR THE THALASSE MIA TRAIT 26
230+IMPACTS THE HEALTH O F AN INDIVIDUAL WITH THE TRAIT; AND 27
247231
248- (b) On or before December 1, 2022, the Statewide Steering Committee on Sickle
249-Cell Disease shall report its findings and recommendations, in accordance with § 2–1257 of
250-the State Government Article, to the General Assembly.
232+ (2) HOW THE SICKLE CELL T RAIT OR THE THALASSE MIA TRAIT IS 28
233+PASSED FROM A PARENT TO A CHILD. 29
251234
252- SECTION 2. 4. AND BE IT FURTHER ENACTE D, That this Act shall take effect
253-October July 1, 2022.
235+18–509. 30
236+ 6 SENATE BILL 859
254237
255-Approved by the Governor, May 12, 2022.
238+
239+ THE DEPARTMENT SHALL MAIN TAIN IN A CONSPICUO US LOCATION ON ITS 1
240+WEBSITE A LIST OF RE SOURCES FOR HEALTH C ARE PRACTITIONERS TO USE TO 2
241+IMPROVE THEIR UNDERS TANDING AND CLINICAL TREATMENT OF INDIVID UALS WITH 3
242+SICKLE CELL DISEASE OR THE SICKLE CELL T RAIT, INCLUDING INFORMATIO N ON 4
243+THE HEALTH IMPACTS O F CARRYING THE SICKLE CELL TRAIT. 5
244+
245+ SECTION 2. AND BE IT FURTHER ENACTED, That, on or before April 1, 2023, 6
246+the Maryland Department of Health shall establish a plan to update its website to reflect the 7
247+information required under § 18–509 of the Health – General Article, as enacted by Section 8
248+1 of this Act, including a timeline for when the updates will be available on the website. 9
249+
250+ SECTION 3. AND BE IT FURTHER ENACTED, That: 10
251+
252+ (a) The Statewide Steering Committee on Sickle Cell Disease, in conjunction with 11
253+the Maryland Department of Health and other relevant stakeholders, shall study and make 12
254+recommendations on: 13
255+
256+ (1) how to enhance access to services for individuals with sickle cell disease 14
257+with a focus on areas of the State where there is a statistically high number of individuals 15
258+with sickle cell disease and areas where there is a lack of providers with expertise in treating 16
259+sickle cell disease; 17
260+
261+ (2) whether to establish a sickle cell disease registry, and if recommended, 18
262+the process and guidelines for establishing a registry, obtaining information, connecting 19
263+with the State designated exchange, and protecting data privacy; 20
264+
265+ (3) how to enhance the coordination of health care services for individuals 21
266+with sickle cell disease who are transitioning from pediatric to adult health care in the State 22
267+including the identification of available resources for individuals who are transitioning; and 23
268+
269+ (4) how to engage with community –based health fairs and other 24
270+community–sponsored events in areas with a statistically high number of individuals with 25
271+sickle cell disease to provide outreach and education on living with sickle cell disease and 26
272+how to access health care services. 27
273+
274+ (b) On or before December 1, 2022, the Statewide Steering Committee on Sickle 28
275+Cell Disease shall report its findings and recommendations, in accordance with § 2–1257 of 29
276+the State Government Article, to the General Assembly. 30
277+
278+ SECTION 2. 4. AND BE IT FURTHER ENACTED, That this Act shall take effect 31
279+October July 1, 2022. 32
280+
281+
282+
283+