Raising awareness and encouraging research for diffuse intrinsic pontine glioma and pediatric cancers; designating December 11 as Addie's Day.
Impact
The resolution serves as an important symbolic gesture to recognize the severe impact of DIPG on children and families, aiming to galvanize public and private support for research initiatives. By designating a specific day for awareness, the legislature hopes to ensure that issues related to pediatric cancers receive the visibility that they deserve, potentially influencing funding and research directions at both state and federal levels. This can lead to more focused medical research, ultimately resulting in better strategies for treatment and care for children afflicted with these cancers.
Summary
HCR1002 is a concurrent resolution from the Oklahoma Legislature that aims to raise awareness and encourage research for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers. The resolution designates December 11th as 'Addie's Day' in honor of Addalyn 'Addie' Bourasaw, who lost her battle with DIPG. This initiative highlights the critical need for increased research funding for pediatric cancers, especially since DIPG has not seen improvements in prognosis over the last four decades.
Sentiment
The sentiment surrounding HCR1002 is predominantly positive, as it seeks to honor a young life lost to cancer while advocating for better medical research. Supporters of the resolution emphasize the urgent need for change regarding funding and scientific exploration of DIPG, echoed by advocates in the healthcare community. Overall, the resolution reflects a growing recognition of the silent epidemic of pediatric cancers and the desperate necessity for advancements in treatment options.
Contention
While generally seen as a unifying effort, there may be underlying tensions related to the allocation of research funding, particularly regarding how much priority pediatric cancers receive compared to other medical research areas. The call for increased federal research funding is both a source of hope and contention, as it requires navigating complicated political and funding landscapes. Nevertheless, HCR1002 seeks not only to commemorate Addie’s legacy but also to prompt action toward lasting change in the battle against DIPG and similar diseases.
Carry Over
Raising awareness and encouraging research for diffuse intrinsic pontine glioma and pediatric cancers; designating December 11 as Addie's Day.
Pediatric cancer; creating the Pediatric Cancer Research and Resources Revolving Fund; utilization of funds; expenditures; requiring promulgation of rules; effective date; emergency.