83rd OREGON LEGISLATIVE ASSEMBLY--2025 Regular Session Enrolled House Concurrent Resolution 4 Sponsored by Representatives MCINTIRE, LEVY B; Representative RESCHKE, Senator GELSER BLOUIN (Presession filed.) Whereas Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders that together affect 1 in 5,000 people; and Whereas each type of EDS has its own set of symptoms, but some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility and tissue fragility; and Whereas hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury and pain; and Whereas other symptoms of HSD include fatigue, headaches, gastrointestinal problems and autonomic dysfunction; and Whereas there is no cure for any type of EDS or HSD, and the conditions are managed by ad- dressing a person’s symptoms; and Whereas EDS and HSD can cause a variety of symptoms in many different areas of the body, so people with these conditions often require multiple providers in different specialties to manage their care; and Whereas access to medical professionals who are knowledgeable about EDS and HSD is limited in Oregon; and Whereas a lack of awareness about EDS and HSD in the United States and across the world stands in the way of diagnosis, management and research of these conditions; and Whereas awareness about EDS and HSD by both medical professionals and the general public can help improve the lives of people living with EDS and HSD in Oregon; now, therefore, Be It Resolved by the Legislative Assembly of the State of Oregon: That we, the members of the Eighty-third Legislative Assembly, designate May 2025 as Ehlers- Danlos Syndromes and Hypermobility Spectrum Disorders Awareness Month; and be it further Resolved, That a copy of this resolution shall be presented to the Ehlers-Danlos Society. Enrolled House Concurrent Resolution 4 (HCR 4-INTRO) Page 1 Adopted by House March 10, 2025 Timothy G. Sekerak, Chief Clerk of House Julie Fahey, Speaker of House Adopted by Senate April 21, 2025 Rob Wagner, President of Senate Enrolled House Concurrent Resolution 4 (HCR 4-INTRO) Page 2