Video & Transcript DataContr Research : 'sickle cell disease'
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TX
Texas 2025 - 89th Regular
89th Legislative Session Feb 25th, 2025 at 02:00 pm
Texas House Floor Meeting
Transcript Highlights:
- My friend and former colleague, Kyle Casale, lost his mom, Linda Casale, to the same disease.
- the same disease, and a friend of many in this capital, Andrea
- data-time="882"> The right to try is important because prior to 2015, if you were diagnosed with a disease
- and the drug your doctor wanted to give you was approved for a different disease, they couldn't give
- this journey and expand patient advocacy and give every person the right to fight these horrible diseases
Keywords:
Texas Food and Fuel Association, HR306, healthcare awareness, public participation, legislative resolutions
Summary:
The meeting focused on various resolutions and bills, demonstrating active participation from all members present. Notably, HR309 was adopted, recognizing the contributions of the Texas Food and Fuel Association in supporting the oil and gas industry for over 70 years. Representatives emphasized the organization's role in ensuring the supply and distribution of fuel across Texas and highlighted their commitment to education and professional development within the industry. Other resolutions discussed included HR306, which recognized March 2025 as Bleeding Disorders Awareness Month, illustrating the committee's engagement with healthcare issues.
TX
Texas 2025 - 89th Regular
Higher Education Apr 15th, 2025 at 10:04 am
House Higher Education Committee
Transcript Highlights:
- I have a rare disease.
- She was talking about how nutrition can prevent disease, and so that perked my interest.
- /span> But on mitigating and possibly even reversing chronic disease
- I've mentioned the ability to prevent disease or reverse the effects of chronic disease based on what
Pathophysiology, which is abnormal or disease-type
Bills:
HB1105, HB1527, HB1787, HB1972, HB2081, HB3296, HB3976, HB4071, HB4234, HB4438, HB4701, HB5092, HB5150, HB5180, HB5265, HB5333, HJR203
Keywords:
tuition exemption, paramedics, higher education, laboratory fees, emergency medical services, tuition exemption, peace officers, higher education, criminal justice, law enforcement, degree programs, public institutions, nutrition education, medical curriculum, public health, dietary practices, chronic diseases, intellectual disabilities, developmental disabilities, higher education
Summary:
The committee meeting primarily focused on several bills related to education and public safety. Notable discussions included HB1105, which seeks to provide EMS employees with tuition exemptions similar to those received by firefighters and police officers, thus addressing educational parity among first responders. Representative Ward-Johnson presented the bill and highlighted the growing responsibilities of paramedics in the changing landscape of emergency services. Witnesses from the Austin EMS Association spoke in support, emphasizing the importance of quality education for EMS workers in enhancing public safety and service delivery. The committee also discussed HB1705 and HB2290, which aim to improve educational accreditation and health benefits for students, respectively, indicating a broad focus on enhancing the educational framework within the state.
TX
Transcript Highlights:
- or she was drunk, just like he or she was over their time in the cab, or high, or looking at their cell
- Evidently, he was so focused on a cell phone conversation he was having that he unknowingly plowed into
- He was on the cell phone and was also a convicted felon.
- It proved that his cell phone talking was habitual.
- They co-admitted that they didn't enforce their no cell phone policy.
Keywords:
railroad, train, collision, information disclosure, safety, driver's license, reporting, off-highway vehicles, public land, safety certificate, transportation, Parks and Wildlife Code, tolls, county revenue, civil penalty, ad valorem tax, transportation funding, SB39, HB19, SB2246
Summary:
During the committee meeting, significant discussions revolved around three main bills: SB39, HB19, and SB2246. Senator Bettencourt laid out SB39, aimed at revising the admission rule related to commercial vehicle collision cases. The intention behind this bill is to standardize trial procedures by limiting the evidence admissible in the first phase, ensuring that unnecessary complexity does not cloud the issue of fault. Various stakeholders, including trial lawyers and business representatives, provided insights into the impact of these changes, highlighting concerns over insurance costs and practical implications on litigations. Public testimony reflected a mix of support and opposition, showcasing the contentious nature of the bill's modifications.
Additionally, the committee addressed SB2246 regarding salvage auto dealers and the process of obtaining titles for vehicles that will not return to the road, which was met with relatively little challenge as stakeholders recognized the necessity for clarity and efficiency in this process. The meeting concluded with promises from members to continue discussions on these important legislative measures, indicating an ongoing commitment to addressing the complex issues at hand.
TX
Texas 2025 - 89th Regular
Criminal Jurisprudence Mar 4th, 2025 at 10:30 am
House Criminal Jurisprudence Committee
Transcript Highlights:
- The height of the ceilings, lack of wet cells, and various other issues are areas that cause concern
- He basically said, "If I come out of this cell, I'm going
I only have one facility that has wet cells, meaning
- I mean, have you ever had a problem with your cell phone? I mean, things like this happen.
- I mean, have you ever had a problem with your cell phone? Things like this happen.
Keywords:
juvenile justice, staffing shortages, youth violence, mental health, Texas Juvenile Justice Department, funding
Summary:
The meeting of the Texas Juvenile Justice Committee focused on addressing key issues within the juvenile justice system, particularly outlining a severe staffing shortage that impacts service delivery to youth in secure facilities. The Director of the Texas Juvenile Justice Department presented significant findings, including a spike in violence among youth and a concerning increase in youth with heightened aggressive behaviors and mental health needs. The committee emphasized the urgent need for additional staffing and funding to enhance the living and working conditions in juvenile facilities and ensure adequate programming for the youth involved.
TX
Transcript Highlights:
- This is how we turn around our chronic disease.
- An effective way to help prevent chronic diseases...
- ...to address chronic diseases.
- Seven out of ten leading causes of death are linked to disease, and over the last 50 years, obesity has
- chronic disease, etc.
Keywords:
special education, funding, individualized education program, visual impairments, accessibility, support services, state education code, special education, funding, emergency preparedness, SB568, SB57, student safety, service intensity model, early intervention, public testimony
Summary:
The committee meeting centered around special education funding and safety provisions for children with disabilities. Key discussions were led by Senator Bettencourt regarding the transformative potential of SB568, which proposes a transition to an eight-tier service intensity funding model. This model is designed to better accommodate the needs of special education students, ensuring they receive the necessary services tailored to their unique requirements. The bill received strong support from stakeholders and included testimony from educators and advocates highlighting the importance of early intervention and the need for ongoing funding support.
TX
Transcript Highlights:
- Isn't there a difference in open cell or closed cell spray foam?
Well, both open cell and closed cell spray foam insulation
- are air impermeable, as is closed cell spray foam.
- Closed cell spray foam acts as a vapor barrier.
- However, vapor can move through open cell foam.
Bills:
HB45, HB755, HB1232, HB1555, HB2460, HB2702, HB2973, HB3120, HB3225, HB3314, HB3356, HB3371, HB3634, HB3638, HB4247, HB4283, HB4290, HB4302, HB4503, HB4511, HB4565, HB4581, HB4627, HB4632, HB4660, HB4668, HB4960, HB5042
Keywords:
housing, affordable housing, rent control, landlord-tenant laws, housing rights, lobbying, public entities, expenditures, government code, transparency, lobbying, public entities, transparency, Texas Ethics Commission, government regulation, lobbying restrictions, public entities, government accountability, transparency, taxpayer money
Summary:
The committee convened to discuss several significant pieces of legislation, primarily focusing on energy policies and public safety regulations. Notable discussions included Representative McLaughlin's HB4341, which mandates energy response maps for critical infrastructure, and received unanimous support for its favorable report. Meanwhile, HB3356 faced substantial opposition due to concerns over its potential to increase consumer costs and the undue penalties it imposes on existing generators. The discussions also touched on Representative Kitzman's HB3120 aimed at improving oversight and regulations for facilities housing unaccompanied minors, reflecting the committee's commitment to child welfare and safety in Texas.
TX
Texas 2025 - 89th Regular
Water, Agriculture, and Rural Affairs Apr 22nd, 2025
Transcript Highlights:
- Chairman, Chronic Wasting Disease poses a significant threat to the Texas deer population.
- effectiveness of current Parks and Wildlife's rules and policies in managing and containing Chronic Wasting Disease
- 258"> to CWD using genotype analysis to explore whether some deer have natural traits that reduce disease
Keywords:
SB2476, transfer of water supply, Angelina River Authority, technical capabilities, sunset accountability
Summary:
This committee meeting focused on the discussions surrounding SB2476, which proposes the transfer of the Woodlawn Water Supply Corporation to the Angelina and Natchez River Authority. Senator Nichols presented the bill, highlighting its local agreements and the technical capabilities of the River Authority to manage the water supply efficiently. The discussion included inquiries about the implications of this transfer, particularly regarding sunrise accountability and whether the new arrangement would adhere to sunset processes in the future. Members engaged in a collaborative dialogue, reflecting an understanding of the local needs and the importance of maintaining water supply management.
TX
Texas 2025 - 89th Regular
89th Legislative Session Mar 12th, 2025 at 10:00 am
Texas House Floor Meeting
Transcript Highlights:
- continuous period for eligibility under the program for certain children, referred to the Subcommittee on Disease
- programs for certain veterans provided by toll project entities, referred to the Subcommittee on Disease
- of low THC cannabis for patients with certain medical conditions, referred to the Subcommittee on Disease
- data-time="3618">HB 1592 by Post relates to an alert system for dangerous plant and wildlife pests and diseases
- relates to parental rights regarding cancer treatment for children, referred to the Subcommittee on Disease
Summary:
The meeting of the committee addressed a broad range of topics with significant attention paid to HB1554 and HB1569. HB1554, presented by Caprigliano, involved discussions on the authority of political subdivisions to utilize public funds for legal services for unlawfully present individuals, which stirred a debate among committee members regarding state resources and responsibilities. In contrast, HB1569, which concerns prohibitive measures on non-consensual medical procedures for minors with intersex traits, generated compelling testimony from advocacy groups and health professionals, stressing the bill’s implications on patient rights and medical ethics. Overall, the committee dedicated time to hearing from both proponents and opponents of these bills, ensuring a thorough examination of the issues at hand.
TX
Transcript Highlights:
- Prescription drugs, preventive and wellness services, and chronic disease management screenings.
- What we do is early detection of rare and chronic kidney disease.
- Brain injury is the worst disease of all.
- There are two medications available that can treat Alzheimer's disease effectively.
- There's documentation showing an increased incidence of Alzheimer's disease, and therefore, the cost
Keywords:
advanced practice registered nurse, health maintenance organization, preferred provider, insurance, healthcare access, healthcare, insurance, provider ranking, cost-sharing, fiduciary duty, patient choice, insurance, annuities, health coverage, trade practices, rebates, inducements, health promotion, wellness programs, insurance
Summary:
The committee meeting revolved around key discussions on several proposed bills, particularly focusing on HB3211, which aims to improve patient access to optometrists. Multiple stakeholders participated, expressing their views and concerns regarding the impact of the bill on vision care networks. The discussions highlighted the need for a clearer application process for optometrists to be included in vision plan networks, reflecting a powerful sentiment from both healthcare professionals and patients about access to care. The meeting also encapsulated varying perspectives on the legal aspects surrounding HB2275, addressing arbitration provisions for surplus policies, illustrating the committee's diligence in scrutinizing regulatory frameworks for consumers.
TX
Transcript Highlights:
- ="1908">There's a study called the Framingham study in Massachusetts studying just cardiovascular disease
- And since we're in a medically underserved area, we encounter these diseases more frequently.
I was misdiagnosed three times for Lyme disease as
- I qualified for the TCUT for two conditions: one for an incurable neuro-rhododendron disease, and PTSD
- This includes people with autoimmune inflammatory diseases, chronic pain, and rare conditions.
Bills:
HB35, HB4490, HB4454, HB2188, HB3794, HB3078, HB4743, HB2556, HB46, HB5342, HB4783, HB3785, HB1639, HB2581, HB4224, HB4070, HB4099, HB4882, HB5278
Keywords:
peer support, first responders, mental health, confidentiality, emergency services, disclosure, next of kin, public information, deceased persons, privacy rights, patient solicitation, marketing practices, healthcare regulation, task force, deceptive advertising, nurse aide, certification, Texas Board of Nursing, healthcare workforce, nursing standards
Summary:
The meeting convened to discuss various health-related bills, with significant emphasis placed on addressing substance abuse and the associated healthcare challenges in Texas. Notable discussions revolved around HB5342, which aims to sustain 988 operations to aid individuals in crisis, while HB4454 focuses on updating laws to combat unethical patient brokering within substance use treatment programs. Various witnesses, including healthcare professionals, provided testimony supporting these initiatives, highlighting the impact of substance abuse on public health and the necessity for legislative backing in these areas. The committee heard from several members who articulated the urgency of implementing effective measures to address substance abuse, especially with the rising concerns around opioid-related deaths and treatment accessibility in underserved areas.
TX
Texas 2025 - 89th Regular
Appropriations - S/C on Article III Feb 27th, 2025 at 10:30 am
House Appropriations - S/C on Article III
Transcript Highlights:
- We anticipate significant decreases in disease, decreases
- Healthy South Texas combats high disease rates in 27 counties, while Texas 4-H annually reaches over
- all the usual diseases.
- This is a dramatic example, but each day TVMDL detects numerous diseases in animals that are a threat
- section, so essential in the detection of many diseases,
Keywords:
workforce development, health services, veterinary care, community colleges, emergency management
Summary:
The committee convened to discuss critical funding and legislative matters regarding various state initiatives, notably focusing on workforce development, health services, and emergency management. The discussions revealed the heightened importance of supporting community colleges and addressing workforce shortages in healthcare, especially considering the increased demand for veterinary services as pet ownership rose due to the pandemic. Representatives from various organizations presented their requests for funding, emphasizing the necessity of enhancing educational outcomes and preparedness programs.
TX
Texas 2025 - 89th 1st C.S.
Senate Select Committee on Disaster Preparedness and Flooding Aug 8th, 2025
Transcript Highlights:
- back to what I call old-school technology—the outdoor warning sirens—which we know work well with cell
That viewer, through your cell phone, through your
- And make sure we're not missing the obvious on this cell
- I'm hopefully getting their cell phone number.
Why do I want their cell phone number?
Keywords:
disaster response, Senate Bill 1, Senate Bill 2, flood management, water conservation, public safety, training and education, emergency management
Summary:
The committee meeting focused on several critical bills related to disaster response and water conservation. Senate Bill 1, the Natural Disaster Omnibus Bill, was extensively discussed, with testimonies reflecting on recent flooding incidents in Texas. Senator Perry emphasized the need for policy solutions to prevent future tragedies following historic flooding that resulted in significant loss of life. The committee adopted the committee substitutes for both SB1 and SB13 without objection, highlighting the broad support for these initiatives aimed at water conservation and improved emergency response protocols. Additionally, members expressed the importance of training and educating officials involved in disaster management to ensure they are equipped to handle emergencies effectively.
TX
Texas 2025 - 89th Regular
89th Legislative Session Mar 7th, 2025 at 02:00 pm
Texas House Floor Meeting
Transcript Highlights:
- to the improvements of the Texas Information Referral Network, is referred to the Subcommittee on Disease
- by Shaheen, relating to the provision of telepharmacy services, is referred to the Subcommittee on Disease
- manual report of the regional allocation of mental health beds, is referred to the Subcommittee on Disease
- 1147 by Gomez, relating to the establishment by the Texas workforce, is referred to the Committee on Disease
Keywords:
legislation, public safety, education, witnesses, confidentiality, economic development, marriage license
Summary:
The committee meeting was robust, focusing on a wide array of bills that addressed various issues including education, public safety, and economic development. Members took turns presenting and questioning several proposed laws, with active participation from both committee members and invited witnesses. Notably, HB1193 received critical attention as it aimed to reinforce the confidentiality of certain information on marriage licenses, drawing significant debate about privacy and transparency. Witnesses presented their supports and concerns, leading to a rich dialogue about the balance between public knowledge and personal rights.
TX
Texas 2025 - 89th Regular
Press Conference: Senators Tan Parker, Brent Hagenbuch, and Adam HinojosaRegarding efforts to stop human trafficking in Texas. Jan 29th, 2025
Texas Senate Floor Meeting
Transcript Highlights:
- marker="31" data-time="900">Today, predators and traffickers are talking to your children on their cell
- Talking to your children on their cell phones, in your kitchen
Keywords:
American Public Works Association, public works, infrastructure, Texas, recognition day, local government, municipalities, public works, infrastructure, APWA, Texas Chapter, community development, engineering, professional recognition, community impact, Texas Society of Professional Engineers, Lubbock leadership, engineering, recognition, community impact
Summary:
The meeting focused on the critical issue of human trafficking in Texas, particularly highlighting the trafficking of boys and young men. Several legislators, including Senator Parker, emphasized the necessity of raising awareness about the misconception that trafficking predominantly affects women and girls. The introduction of the first-ever safe house for young male victims was a significant point of discussion, with various stakeholders, including the Texas Trucking Association, collaborating to promote awareness campaigns. Senator Parker and Representative Baumgartner expressed their commitment to eradicate this issue and highlighted the urgency due to its prevalence within communities across Texas.
TX
Texas 2025 - 89th Regular
89th Legislative Session Mar 5th, 2025 at 10:00 am
Texas House Floor Meeting
Transcript Highlights:
- the Medicaid eligibility of certain women following a pregnancy, referred to the Subcommittee on Disease
- the establishment of a grocery access investment fund program, is referred to the Subcommittee on Disease
- the policy regarding the maintenance, administration, and disposal of medication for respiratory diseases
- the policy regarding the maintenance, administration, and disposal of medication for respiratory diseases
- to the Subcommittee on Disease Prevention and Women's and
Keywords:
Sylvester Turner, tribute, legacy, Alamo Day, community service, legislation, announcements
Summary:
The committee meeting began with a moment of silence dedicated to the memory of the late Congressman Sylvester Turner, acknowledged by multiple members who spoke eloquently about his legacy and contributions to the community. This emotional tribute was followed by a series of announcements, including recognizing distinguished guests and discussing significant upcoming dates such as Alamo Day. The atmosphere of the meeting reflected a blend of mourning and celebration of service, as members recounted personal anecdotes and expressing gratitude for Turner's guiding influence in their political paths.
TX
Texas 2025 - 89th Regular
Health and Human Services (Part II) Apr 23rd, 2025
Senate Health & Human Services Committee
Transcript Highlights:
- the alarming rise of mortality among Americans due to drug overdose, suicide, and alcohol-related disease
- ..to gain treatment to effectively mitigate symptoms of Parkinson's, multiple sclerosis, and Lyme disease
- /span> Efficacy seems to pertain to the nature of Parkinson's disease
- for multiple sclerosis has shown similar promise in situations where there has not been substantial disease
- studies out there demonstrating, for example, therapeutic properties for things like Parkinson's disease
Bills:
SB128, SB640, SB672, SB904, SB1141, SB1263, SB1525, SB1528, SB2041, SB2306, SB2308, SB2357, SB2446, SB2583, SB2695, SB2857, SB2891
Keywords:
hospital reporting, child abuse, neglect, administrative penalty, medical ethics, child protection, hearing instruments, licensing, continuing education, patient protection, medical evaluations, parent-child relationship, Department of Family and Protective Services, adversary hearing, protected rights, legal custody, prescription drugs, prior authorization, neurodegenerative diseases, health benefits
Summary:
During this meeting of the Senate Committee on Health and Human Services, significant attention was given to various bills aimed at enhancing healthcare provisions and improving processes within the health sector. Notable discussions included the presentation of Senate Bill 547 by Senator Menendez, which seeks to streamline provider notice requirements for healthcare professionals by proposing a centralized database managed by the Texas Department of Insurance. The bill was favorably reported and moved forward with recommendations for local and uncontested calendars. Additionally, a committee substitute for Senate Bill 2308 was introduced, focusing on innovative mental health treatments for veterans, particularly regarding ibogaine as a treatment for opioid use disorder. This proposal received strong support due to its potential to lead the nation in mental health care advancements.
TX
Transcript Highlights:
- I was actually the first kid in my high school to have a cell phone because I had a full-time job as
- At the time, I remember hearing all this hysteria about cell phones and how they were going to...
- Genitals to disease or accident, would you still be a man
Keywords:
social media, children, account verification, data privacy, parental control, financial crime, card fraud, motor fuel theft, law enforcement, criminal activity, skimmers, prevention, training, biological sex, government information, definitions, sex-based distinctions, public health, federal directives, state authority
Summary:
During the meeting of the committee on state affairs, multiple bills were discussed, with a significant focus on HB186, which aims to implement age verification for social media usage among minors. Public testimony highlighted concerns regarding potential invasions of privacy, the overreach of governmental authority, and the impact on children's mental health. Advocates for the bill argued that it protects children from harmful online content, while opponents expressed worries about its broader implications on free speech and social connectivity for young people. The meeting attracted a diverse audience, including experts, advocates, and concerned citizens, each contributing passionately to the dialogue surrounding these important legislative issues.
TX
Texas 2025 - 89th Regular
Water, Agriculture, and Rural Affairs May 19th, 2025
Transcript Highlights:
- Diseases and pests can negatively impact the agriculture industry, resulting in millions and possibly
- Texans to protect themselves from pests and diseases of regulatory
- Furthermore, the bill establishes a pest and disease control depredation program to provide funding for
- marker="334" data-time="1998"> and the Texas Animal Health Commission to proactively address pests, diseases
This pertains to pest and disease management administered
Keywords:
agriculture, House Bill 43, House Bill 4163, Texas Agricultural Finance Authority, municipal regulations, economic crisis, fertilizer, drought, public testimony
Summary:
The meeting of the Senate Committee on Water, Agriculture, and Rural Affairs was marked by critical discussions surrounding several agricultural bills aimed at addressing the challenges faced by the farming community in Texas. Notably, House Bill 43 was presented, which seeks to update the Texas Agricultural Finance Authority to improve financial support for farmers experiencing crisis due to extensive agricultural losses, exacerbated by drought and supply chain issues. The committee heard testimonies from stakeholders emphasizing the urgent need for these reforms to help secure the agricultural industry’s future and ensure support for farmers during these trying times. Another significant topic was House Bill 4163, which aims to relieve agricultural operations from excessive municipal regulations concerning land management along public roadways, highlighting the burdens placed on farmers by local governments.
TX
Texas 2025 - 89th Regular
S/C on Transportation Funding Apr 28th, 2025 at 10:04 am
House S/C on Transportation Funding
Transcript Highlights:
- And I'd also like to remind everyone in the room once again to silence your cell phones.
- And I'd also like to remind everyone in the room once again to silence your cell phones.
Keywords:
vehicle registration, county fee, local governance, referendum, taxation, transit authority, financial obligation, withdrawal, election unit, Texas Transportation Code, veterans, toll discounts, transportation, infrastructure, Texas highways, veteran discount program, toll collection, State Highway 130, transportation funding, Texas Department of Transportation
Summary:
The meeting focused primarily on discussions surrounding several notable bills, particularly concerning toll roads in Texas. Chairman Metcalf introduced HB5346, which aims to establish clear mandates for the cessation of tolling once a project's financial obligations have been satisfied. This bill sparked considerable debate, with proponents arguing for taxpayer fairness and control, while opponents raised concerns about potential perpetual tolls disguised as public votes every five years. Witnesses voiced strong opinions both for and against the measures, highlighting the ongoing tensions over infrastructure funding and user fees.
TX
Transcript Highlights:
- marker="385" data-time="2304">It messes up the chloride channel, keeps it open, chloride goes in the cell
These only exist in invertebrate cells, certain types
- "2322"> It does not work on viruses or bacteria, which do not have these channels in their bilayer cell
Keywords:
real property theft, real property fraud, criminal offenses, restitution, elderly protection, disabled individuals, property tax exemption, title fraud, recording requirements, real property theft, real property fraud, criminal offenses, elderly protection, disability rights, recording requirements, restitution, disaster relief, emergency preparedness, flood management, local government grants
Summary:
The meeting featured extensive discussions centered on several legislative bills, particularly focusing on House Bill 8, which aims to reform public school accountability and testing methods in Texas. The bill's sponsor passionately argued for its transformative potential, highlighting the replacement of the STAAR test with shorter, more frequent assessments to better measure student performance. Amendments were proposed to restore social studies testing, emphasizing the importance of history in Texas education. The bill ultimately passed with a vote of 21 ayes and 5 nays, showcasing strong support among the members.