1 | 1 | | S.B. No. 1612 |
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2 | 2 | | |
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3 | 3 | | |
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4 | 4 | | AN ACT |
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5 | 5 | | relating to the provision of information by health and human |
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6 | 6 | | services agencies to assist children with velocardiofacial |
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7 | 7 | | syndrome. |
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8 | 8 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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9 | 9 | | SECTION 1. Subchapter D, Chapter 117, Human Resources Code, |
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10 | 10 | | is amended by adding Section 117.076 to read as follows: |
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11 | 11 | | Sec. 117.076. INFORMATION REGARDING VELOCARDIOFACIAL |
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12 | 12 | | SYNDROME. (a) The commission shall ensure that each health and |
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13 | 13 | | human services agency that provides intervention services to young |
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14 | 14 | | children is provided with information developed by the commission |
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15 | 15 | | regarding velocardiofacial syndrome. |
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16 | 16 | | (b) Each health and human services agency described by |
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17 | 17 | | Subsection (a) shall provide the information regarding |
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18 | 18 | | velocardiofacial syndrome to appropriate health care coordinators |
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19 | 19 | | and therapists and to parents of a child who is known by the agency |
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20 | 20 | | to have at least two of the following conditions: |
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21 | 21 | | (1) hypotonicity; |
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22 | 22 | | (2) communication delay; |
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23 | 23 | | (3) articulation disorder; |
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24 | 24 | | (4) resonance disorder; |
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25 | 25 | | (5) nasal regurgitation during feeding as an infant |
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26 | 26 | | with no history of a cleft palate; |
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27 | 27 | | (6) recurrent ear infections as well as diagnosis of |
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28 | 28 | | cardiac anomaly, feeding disorder, cleft palate, or submucosal |
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29 | 29 | | cleft palate; or |
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30 | 30 | | (7) fine motor or gross motor skills delay. |
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31 | 31 | | (c) The commission shall develop the information required |
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32 | 32 | | under Subsection (a) using medically accurate, peer-reviewed |
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33 | 33 | | literature. The information must include: |
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34 | 34 | | (1) an explanation of velocardiofacial syndrome |
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35 | 35 | | symptoms, diagnosis, and treatment options; |
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36 | 36 | | (2) information on relevant state agency and nonprofit |
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37 | 37 | | resources, parent support groups, and available Medicaid waiver |
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38 | 38 | | programs; and |
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39 | 39 | | (3) a recommendation for follow-up with a health care |
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40 | 40 | | provider for evaluation of the underlying etiology and an |
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41 | 41 | | explanation that the existence of any of the conditions listed in |
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42 | 42 | | Subsection (b) will not necessarily result in a diagnosis of |
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43 | 43 | | velocardiofacial syndrome. |
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44 | 44 | | (d) The executive commissioner may adopt rules as necessary |
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45 | 45 | | to implement this section. |
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46 | 46 | | SECTION 2. This Act takes effect September 1, 2009. |
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47 | 47 | | ______________________________ ______________________________ |
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48 | 48 | | President of the Senate Speaker of the House |
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49 | 49 | | I hereby certify that S.B. No. 1612 passed the Senate on |
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50 | 50 | | April 24, 2009, by the following vote: Yeas 30, Nays 0; and that |
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51 | 51 | | the Senate concurred in House amendment on May 29, 2009, by the |
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52 | 52 | | following vote: Yeas 31, Nays 0. |
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53 | 53 | | ______________________________ |
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54 | 54 | | Secretary of the Senate |
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55 | 55 | | I hereby certify that S.B. No. 1612 passed the House, with |
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56 | 56 | | amendment, on May 26, 2009, by the following vote: Yeas 145, |
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57 | 57 | | Nays 0, one present not voting. |
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58 | 58 | | ______________________________ |
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59 | 59 | | Chief Clerk of the House |
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60 | 60 | | Approved: |
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61 | 61 | | ______________________________ |
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62 | 62 | | Date |
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63 | 63 | | ______________________________ |
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64 | 64 | | Governor |
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