Texas 2011 - 82nd Regular

Texas House Bill HB2312 Compare Versions

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1	1	By: Coleman, Miles (Senate Sponsor - West) H.B. No. 2312
2	2	(In the Senate - Received from the House May 4, 2011;
3	3	May 5, 2011, read first time and referred to Committee on Health
4	4	and Human Services; May 13, 2011, reported favorably by the
5	5	following vote: Yeas 7, Nays 0; May 13, 2011, sent to printer.)
6	6
7	7
8	8	A BILL TO BE ENTITLED
9	9	AN ACT
10	10	relating to the creation of a sickle cell disease program.
11	11	BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
12	12	SECTION 1. Chapter 33, Health and Safety Code, is amended by
13	13	adding Subchapter D to read as follows:
14	14	SUBCHAPTER D. SICKLE CELL DISEASE PROGRAM
15	15	Sec. 33.051. DEFINITIONS. In this subchapter:
16	16	(1) "Commission" means the Health and Human Services
17	17	Commission.
18	18	(2) "Executive commissioner" means the executive
19	19	commissioner of the Health and Human Services Commission.
20	20	(3) "Health and human services agency" means a health
21	21	and human services agency listed by Section 531.001, Government
22	22	Code.
23	23	(4) "Program" means the sickle cell disease program
24	24	established under this subchapter.
25	25	(5) "Sickle cell disease" means any variant of sickle
26	26	cell disease, including sickle cell anemia and sickle cell
27	27	thalassemia.
28	28	Sec. 33.052. DUTIES OF DEPARTMENT. The department shall:
29	29	(1) identify efforts related to the expansion and
30	30	coordination of education, treatment, and continuity of care
31	31	programs for individuals with sickle cell trait and sickle cell
32	32	disease;
33	33	(2) assist the advisory committee created under
34	34	Section 33.053; and
35	35	(3) provide the advisory committee created under
36	36	Section 33.053 with staff support necessary for the advisory
37	37	committee to fulfill its duties.
38	38	Sec. 33.053. ADVISORY COMMITTEE. (a) The governor shall
39	39	appoint an advisory committee composed of 11 members, including a
40	40	program administrator. The members must be located in
41	41	geographically diverse areas of the state and must be interested in
42	42	and knowledgeable about sickle cell trait and sickle cell disease.
43	43	In making appointments to the advisory committee, the governor
44	44	shall consider appointing members who are:
45	45	(1) representatives of a community agency;
46	46	(2) state or local officials responsible for public
47	47	health, social services, or rehabilitation;
48	48	(3) representatives from educational institutions,
49	49	including schools and universities;
50	50	(4) physicians and other health care providers; and
51	51	(5) persons with, or relatives of persons with, sickle
52	52	cell trait or sickle cell disease.
53	53	(b) Members of the advisory committee serve staggered
54	54	three-year terms, with the terms of three or four members expiring
55	55	each year.
56	56	(c) The advisory committee shall meet at least twice a year.
57	57	(d) The advisory committee shall conduct a needs assessment
58	58	and advise the department and the program administrator regarding
59	59	the needs of individuals with sickle cell trait and sickle cell
60	60	disease and make recommendations, including recommendations
61	61	regarding legislative action, department rules, and program
62	62	administration.
63	63	(e) The program administrator shall report periodically to
64	64	the executive commissioner and annually to the governor regarding
65	65	the advisory committee's activities and findings.
66	66	(f) A member of the advisory committee is not entitled to
67	67	compensation but is entitled to reimbursement for travel or other
68	68	expenses incurred while conducting the business of the advisory
69	69	committee as provided by the General Appropriations Act.
70	70	(g) Chapter 2110, Government Code, does not apply to the
71	71	advisory committee.
72	72	Sec. 33.054. GRANTS. (a) The program administrator shall
73	73	investigate and identify grants and other funding mechanisms for
74	74	entities that:
75	75	(1) provide education regarding sickle cell trait and
76	76	sickle cell disease;
77	77	(2) improve the detection of sickle cell trait and
78	78	sickle cell disease and the treatment of sickle cell disease;
79	79	(3) coordinate delivery of services for people with
80	80	sickle cell disease;
81	81	(4) provide access to information regarding genetic
82	82	testing and counseling;
83	83	(5) bundle technical services related to the
84	84	prevention and treatment of sickle cell disease; and
85	85	(6) provide training for health professionals
86	86	regarding sickle cell trait and sickle cell disease.
87	87	(b) The program administrator shall award grants, if
88	88	possible, to eligible organizations in different regions of this
89	89	state.
90	90	(c) The department may solicit and accept gifts, grants, and
91	91	donations of money from the federal government, local governments,
92	92	private corporations, and other persons to be used for the purpose
93	93	of awarding grants under the program.
94	94	Sec. 33.055. RULES. The executive commissioner may adopt
95	95	rules to implement this subchapter.
96	96	Sec. 33.056. EXPIRATION. This subchapter expires September
97	97	1, 2017.
98	98	SECTION 2. This Act takes effect immediately if it receives
99	99	a vote of two-thirds of all the members elected to each house, as
100	100	provided by Section 39, Article III, Texas Constitution. If this
101	101	Act does not receive the vote necessary for immediate effect, this
102	102	Act takes effect September 1, 2011.
103	103	* * * * *