84R9013 JSC-D By: Zerwas H.B. No. 2174 A BILL TO BE ENTITLED AN ACT relating to testing for and education about congenital cytomegalovirus in infants. BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: SECTION 1. This Act shall be known as the Madeline Leigh Armstrong Act. SECTION 2. Subtitle B, Title 2, Health and Safety Code, is amended by adding Chapter 46 to read as follows: CHAPTER 46. CONGENITAL CYTOMEGALOVIRUS Sec. 46.001. DEFINITIONS. In this chapter: (1) "Congenital cytomegalovirus" means cytomegalovirus acquired by an infant before birth. (2) "Department" means the Department of State Health Services. Sec. 46.002. EDUCATIONAL MATERIALS ON CONGENITAL CYTOMEGALOVIRUS. (a) The department, in consultation with the Texas Medical Board, shall develop and publish informational materials for women who may become pregnant, expectant parents, and parents of infants regarding: (1) the incidence of cytomegalovirus; (2) the transmission of cytomegalovirus to pregnant women and women who may become pregnant; (3) birth defects caused by congenital cytomegalovirus; (4) methods of diagnosing congenital cytomegalovirus; (5) available preventive measures to avoid the infection of women who are pregnant or may become pregnant; and (6) treatment options available for children born with congenital cytomegalovirus. (b) The materials must be published in: (1) English and Spanish; (2) an easily comprehensible form; and (3) a typeface large enough to be clearly legible. (c) The department shall periodically review the materials to determine if changes to the contents of the materials are necessary. Sec. 46.003. PUBLICATION OF MATERIALS. (a) The department shall publish the information required to be published under this chapter on the department's Internet website. (b) The department may not charge a fee for physical copies of the materials. The department shall provide appropriate quantities of the materials to any person on request. Sec. 46.004. EDUCATION AND OUTREACH. (a) The department shall establish an outreach program to: (1) educate women who may become pregnant, expectant parents, and parents of infants about cytomegalovirus; and (2) raise awareness of cytomegalovirus among health care providers who provide care to expectant mothers or infants. (b) The department may solicit and accept the assistance of any relevant medical associations or community resources, including faith-based resources, to promote education about cytomegalovirus under this chapter. Sec. 46.005. RULES. The executive commissioner of the Health and Human Services Commission may adopt rules for the implementation of this chapter. SECTION 3. Chapter 47, Health and Safety Code, is amended by adding Section 47.0032 to read as follows: Sec. 47.0032. TESTING FOR CYTOMEGALOVIRUS. (a) If an infant does not pass the newborn hearing screening under Section 47.003, the birthing center shall perform or cause to be performed a test for cytomegalovirus on the infant, unless the parent declines the test. (b) If an infant tests positive for cytomegalovirus, the birthing center shall provide the infant's parents with: (1) the results of the test; (2) information on the potential effects of cytomegalovirus and the treatment options available; and (3) a referral to an appropriate physician or facility for treatment of cytomegalovirus. SECTION 4. Section 161.501(a), Health and Safety Code, is amended to read as follows: (a) A hospital, birthing center, physician, nurse midwife, or midwife who provides prenatal care to a pregnant woman during gestation or at delivery of an infant shall: (1) provide the woman and the father of the infant, if possible, or another adult caregiver for the infant, with a resource pamphlet that includes: (A) a list of the names, addresses, and phone numbers of professional organizations that provide postpartum counseling and assistance to parents relating to postpartum depression and other emotional trauma associated with pregnancy and parenting; (B) information regarding the prevention of shaken baby syndrome including: (i) techniques for coping with anger caused by a crying baby; (ii) different methods for preventing a person from shaking a newborn, infant, or other young child; (iii) the dangerous effects of shaking a newborn, infant, or other young child; and (iv) the symptoms of shaken baby syndrome and who to contact, as recommended by the American Academy of Pediatrics, if a parent suspects or knows that a baby has been shaken in order to receive prompt medical treatment; (C) a list of diseases for which a child is required by state law to be immunized and the appropriate schedule for the administration of those immunizations; (D) the appropriate schedule for follow-up procedures for newborn screening; (E) information regarding sudden infant death syndrome, including current recommendations for infant sleeping conditions to lower the risk of sudden infant death syndrome; and (F) educational information in both English and Spanish on: (i) pertussis disease and the availability of a vaccine to protect against pertussis, including information on the Centers for Disease Control recommendation that parents receive Tdap during the postpartum period to protect newborns from the transmission of pertussis; and (ii) the incidence of cytomegalovirus, methods of diagnosing congenital cytomegalovirus, birth defects caused by congenital cytomegalovirus, and available methods of treatment for an infant born with congenital cytomegalovirus; (2) if the woman is a recipient of medical assistance under Chapter 32, Human Resources Code, provide the woman and the father of the infant, if possible, or another adult caregiver with a resource guide that includes information in both English and Spanish relating to the development, health, and safety of a child from birth until age five, including information relating to: (A) selecting and interacting with a primary health care practitioner and establishing a "medical home" for the child; (B) dental care; (C) effective parenting; (D) child safety; (E) the importance of reading to a child; (F) expected developmental milestones; (G) health care resources available in the state; (H) selecting appropriate child care; and (I) other resources available in the state; (3) document in the woman's record that the woman received the resource pamphlet described in Subdivision (1) and the resource guide described in Subdivision (2), if applicable; and (4) retain the documentation for at least five years in the hospital's, birthing center's, physician's, nurse midwife's, or midwife's records. SECTION 5. (a) The Department of State Health Services shall develop and publish the materials required by Chapter 46, Health and Safety Code, as added by this Act, not later than January 1, 2016. (b) The change in law made by Section 47.0032, Health and Safety Code, as added by this Act, applies only to a hearing screening performed on or after the effective date of this Act. (c) The Department of State Health Services shall revise the pamphlet under Section 161.501(a), Health and Safety Code, as amended by this Act, not later than January 1, 2016. SECTION 6. This Act takes effect September 1, 2015.