Texas 2021 - 87th Regular

Texas Senate Bill SR431 Latest Draft

Bill / Enrolled Version Filed 05/24/2021

                            SENATE RESOLUTION NO. 431
 WHEREAS, Cystic fibrosis, commonly referred to as CF, is a
 genetic disease that affects approximately 30,000 children and
 adults in the United States and nearly 70,000 children and adults
 worldwide, more than 2,000 of whom live in this state; and
 WHEREAS, In persons with cystic fibrosis, a defective gene
 causes the body to produce an abnormally thick, sticky mucus that
 clogs the lungs, and these secretions produce life-threatening
 lung infections; the secretions also obstruct the pancreas and
 prevent its digestive enzymes from reaching the intestines to
 help the body break down and absorb food; and
 WHEREAS, More than 10 million Americans are symptomless
 carriers of the defective CF gene, and this disease occurs in
 approximately one of every 3,500 live births in the United
 States; the median predicted age of survival for a person with
 cystic fibrosis born in 2017 was 46.2 years; and
 WHEREAS, With advances in the treatment of CF, the number
 of adults living with this disease has steadily grown, and
 approximately 900 new cases of cystic fibrosis are diagnosed each
 year; more than 50 percent of the affected population is 18 years
 of age or older, and people with the disease have a variety of
 symptoms attributed to the more than 1,800 mutations of the CF
 gene; and
 WHEREAS, Infant blood screening to detect genetic defects
 is the most reliable and least costly method to identify persons
 likely to have cystic fibrosis; early diagnosis of the disease
 permits early treatment, which enhances the quality of life and
 longevity of patients; the treatment of CF depends on the stage
 of the disease and the organs involved; and
 WHEREAS, Clearing mucus from the lungs is an important part
 of the daily CF treatment regimen; other types of treatments
 include taking pancreatic enzymes and inhaled antibiotics; and
 WHEREAS, A critical component of treating patients with
 cystic fibrosis is access to innovative treatments, which can
 play a crucial role in the lives of patients with CF; and
 WHEREAS, There are 11 world-class treatment centers in
 this state which specialize in the diagnosis of cystic fibrosis
 and the care of persons with CF; and
 WHEREAS, Improving the length and quality of life for
 people with CF starts with awareness; now, therefore, be it
 RESOLVED, That the Senate of the State of Texas, 87th
 Legislature, hereby designate the month of May 2021 as Cystic
 Fibrosis Awareness Month in Texas.
 Buckingham, Campbell
 Kolkhorst, Schwertner
  ________________________________
  President of the Senate
  I hereby certify that the
  above Resolution was adopted by
  the Senate on May 19, 2021.
  ________________________________
  Secretary of the Senate
  ________________________________
  Member, Texas Senate
  ________________________________
  Member, Texas Senate
  ________________________________
  Member, Texas Senate
  ________________________________
  Member, Texas Senate