89R9458 MPF-D By: Blanco S.B. No. 1966 A BILL TO BE ENTITLED AN ACT relating to the provision of information regarding centers for independent living for certain persons with an intellectual or developmental disability. BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: SECTION 1. Subchapter A, Chapter 29, Education Code, is amended by adding Section 29.0033 to read as follows: Sec. 29.0033. INTELLECTUAL OR DEVELOPMENTAL DISABILITY CARE INFORMATION. (a) In this section, "center for independent living" has the meaning assigned by Section 702 of the federal Rehabilitation Act of 1973 (29 U.S.C. Section 796a). (b) Each school district and open-enrollment charter school shall provide informational materials on centers for independent living to a parent or legal guardian whose child: (1) receives special education services under this subchapter; or (2) is covered by Section 504 of the federal Rehabilitation Act of 1973 (29 U.S.C. Section 794). (c) The Health and Human Services Commission, in collaboration with the agency, shall develop and provide the agency the informational materials required to be provided to parents or legal guardians under Subsection (b). The materials must include: (1) a description of the health care and other services available to persons with an intellectual or developmental disability through a center for independent living; and (2) the contact information for centers of independent living in this state. (d) The agency shall make the materials developed under this section available to school districts and open-enrollment charter schools. SECTION 2. Section 161.501(a), Health and Safety Code, is amended to read as follows: (a) A hospital, birthing center, physician, nurse midwife, or midwife who provides prenatal care to a pregnant woman during gestation or at delivery of an infant shall: (1) provide the woman and the father of the infant, if possible, or another adult caregiver for the infant, with a resource pamphlet that includes: (A) a list of the names, addresses, and phone numbers of professional organizations that provide postpartum counseling and assistance to parents relating to postpartum depression and other emotional trauma associated with pregnancy and parenting; (B) information regarding the prevention of shaken baby syndrome including: (i) techniques for coping with anger caused by a crying baby; (ii) different methods for preventing a person from shaking a newborn, infant, or other young child; (iii) the dangerous effects of shaking a newborn, infant, or other young child; and (iv) the symptoms of shaken baby syndrome and who to contact, as recommended by the American Academy of Pediatrics, if a parent suspects or knows that a baby has been shaken in order to receive prompt medical treatment; (C) a list of diseases for which a child is required by state law to be immunized and the appropriate schedule for the administration of those immunizations; (D) the appropriate schedule for follow-up procedures for newborn screening; (E) information regarding sudden infant death syndrome, including current recommendations for infant sleeping conditions to lower the risk of sudden infant death syndrome; (F) educational information in both English and Spanish on: (i) pertussis disease and the availability of a vaccine to protect against pertussis, including information on the Centers for Disease Control and Prevention recommendation that parents receive Tdap during the postpartum period to protect newborns from the transmission of pertussis; and (ii) the incidence of cytomegalovirus, birth defects caused by congenital cytomegalovirus, and available resources for the family of an infant born with congenital cytomegalovirus; and (G) the danger of heatstroke for a child left unattended in a motor vehicle; (2) if the woman is a recipient of medical assistance under Chapter 32, Human Resources Code, provide the woman and the father of the infant, if possible, or another adult caregiver with a resource guide that includes information in both English and Spanish relating to the development, health, and safety of a child from birth until age five, including information relating to: (A) selecting and interacting with a primary health care practitioner and establishing a "medical home" for the child; (B) dental care; (C) effective parenting; (D) child safety; (E) the importance of reading to a child; (F) expected developmental milestones; (G) health care resources available in the state; (H) selecting appropriate child care; and (I) other resources available in the state; (3) if the infant is born with an intellectual or developmental disability, provide the woman and the father of the infant, if possible, or another adult caregiver of the infant with a resource guide on centers for independent living as defined by Section 702 of the federal Rehabilitation Act of 1973 (29 U.S.C. Section 796a) and the services provided by the centers for a child with an intellectual or developmental disability; (4) document in the woman's record that the woman received the resource pamphlet described in Subdivision (1) and the resource guide described in Subdivision (2) or (3), if applicable; and (5) [(4)] retain the documentation for at least five years in the hospital's, birthing center's, physician's, nurse midwife's, or midwife's records. SECTION 3. Subtitle E, Title 7, Health and Safety Code, is amended by adding Chapter 616 to read as follows: CHAPTER 616. INTELLECTUAL OR DEVELOPMENTAL DISABILITY CARE INFORMATION Sec. 616.001. DEFINITION. In this section, "center for independent living" has the meaning assigned by Section 702 of the federal Rehabilitation Act of 1973 (29 U.S.C. Section 796a). Sec. 616.002. PROVISION OF INFORMATION TO PERSON DIAGNOSED WITH INTELLECTUAL OR DEVELOPMENTAL DISABILITY. (a) A health care provider who diagnoses an individual with an intellectual or developmental disability shall provide the individual and, if appropriate, the individual's parent, managing conservator, guardian, or caregiver informational materials on centers for independent living described by Subsection (b). (b) The Health and Human Services Commission shall develop informational materials regarding centers for independent living and post the materials on the commission's Internet website. The informational materials must include: (1) a description of the health care and other services available to persons with an intellectual or developmental disability through a center for independent living; and (2) the contact information for centers of independent living in this state. SECTION 4. (a) Not later than December 1, 2025, the Health and Human Services Commission shall develop and make available the informational materials required by Section 29.0033, Education Code, as added by this Act, and Section 616.002, Health and Safety Code, as added by this Act. (b) Notwithstanding Section 29.0033, Education Code, as added by this Act, or Section 616.002, Health and Safety Code, as added by this Act, a school district, open-enrollment charter school, or health care provider is not required to comply with those provisions until January 1, 2026. SECTION 5. (a) Not later than December 1, 2025, the Department of State Health Services shall develop the resource guide on centers for independent living required to be provided under Section 161.501(a), Health and Safety Code, as amended by this Act. (b) Notwithstanding the change in law made by this Act to Section 161.501(a), Health and Safety Code, a hospital, birthing center, physician, nurse midwife, or midwife who provides prenatal care to a pregnant woman during gestation or delivery of an infant is not required to provide the resource guide on centers for independent living until January 1, 2026. SECTION 6. This Act takes effect September 1, 2025.