1 | 1 | | 89R11608 KRM-F |
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2 | 2 | | By: Cook S.B. No. 2735 |
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3 | 3 | | |
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4 | 4 | | |
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5 | 5 | | |
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6 | 6 | | |
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7 | 7 | | A BILL TO BE ENTITLED |
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8 | 8 | | AN ACT |
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9 | 9 | | relating to the screening of, services for, and educational |
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10 | 10 | | programs for children with visual impairments; authorizing an |
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11 | 11 | | administrative penalty. |
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12 | 12 | | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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13 | 13 | | SECTION 1. This Act may be cited as Zach's Law. |
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14 | 14 | | SECTION 2. Chapter 29, Education Code, is amended by adding |
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15 | 15 | | Subchapter J to read as follows: |
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16 | 16 | | SUBCHAPTER J. PROGRAMS FOR CHILDREN AND STUDENTS WITH |
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17 | 17 | | VISUAL IMPAIRMENT |
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18 | 18 | | Sec. 29.331. DEFINITIONS. In this subchapter, "early |
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19 | 19 | | intervention services," "expanded core curriculum," "functional |
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20 | 20 | | vision assessment," "screening," and "visual impairment" have the |
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21 | 21 | | meanings assigned by Section 36A.001, Health and Safety Code. |
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22 | 22 | | Sec. 29.332. PROGRAM REQUIRED. In addition to a special |
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23 | 23 | | education program under Subchapter A, a school district and |
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24 | 24 | | open-enrollment charter school shall provide a program for |
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25 | 25 | | appropriate interventions from birth, including age-appropriate |
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26 | 26 | | instruction in all areas of an expanded core curriculum, to a child |
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27 | 27 | | who: |
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28 | 28 | | (1) is referred to the district or school under |
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29 | 29 | | Chapter 36A, Health and Safety Code; and |
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30 | 30 | | (2) has a visual impairment, as determined by a |
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31 | 31 | | screening or functional vision assessment conducted under Chapter |
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32 | 32 | | 36A, Health and Safety Code, or through a formal diagnosis of a |
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33 | 33 | | physician or health care provider. |
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34 | 34 | | Sec. 29.333. PROGRAM CONTENTS. A program provided under |
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35 | 35 | | this subchapter must contain: |
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36 | 36 | | (1) expanded core curriculum instruction areas, |
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37 | 37 | | including age-appropriate instruction in: |
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38 | 38 | | (A) orientation and mobility; |
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39 | 39 | | (B) social interaction skills; |
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40 | 40 | | (C) independent living skills; |
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41 | 41 | | (D) assistive technology; |
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42 | 42 | | (E) self determination; |
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43 | 43 | | (F) sensory efficiency skills; |
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44 | 44 | | (G) recreation and leisure; |
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45 | 45 | | (H) compensatory or access skills; and |
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46 | 46 | | (I) career education; and |
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47 | 47 | | (2) early intervention services, including: |
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48 | 48 | | (A) vision therapy; |
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49 | 49 | | (B) developmental support; and |
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50 | 50 | | (C) access to assistive technologies to support |
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51 | 51 | | the child's development and learning. |
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52 | 52 | | Sec. 29.334. COMPENSATORY SERVICES FOR LATE |
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53 | 53 | | IDENTIFICATION. (a) The agency by rule shall require school |
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54 | 54 | | districts and open-enrollment charter schools to provide a student |
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55 | 55 | | with a visual impairment who is identified after third grade with |
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56 | 56 | | additional instruction and support commensurate with the student's |
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57 | 57 | | needs to address developmental delays and the education loss of |
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58 | 58 | | specific visual impairment instruction under the expanded core |
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59 | 59 | | curriculum, caused by the delayed identification for visual |
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60 | 60 | | impairment. |
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61 | 61 | | (b) The agency shall require school districts and |
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62 | 62 | | open-enrollment charter schools in conducting admission, review, |
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63 | 63 | | and dismissal processes to develop individualized plans to address |
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64 | 64 | | and remedy the delayed identification described by Subsection (a) |
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65 | 65 | | and provide the necessary compensatory instruction, including |
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66 | 66 | | additional instruction for relevant skills development and |
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67 | 67 | | opportunities for the student to learn and successfully complete |
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68 | 68 | | the expanded core curriculum. |
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69 | 69 | | (c) If consensus is not reached between a parent or adult |
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70 | 70 | | student and a school district or open-enrollment charter school for |
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71 | 71 | | compensatory services provided under this section, the parent or |
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72 | 72 | | adult student may pursue all administrative remedies available |
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73 | 73 | | under the Individuals with Disabilities Education Act (20 U.S.C. |
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74 | 74 | | Section 1400 et seq.). |
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75 | 75 | | SECTION 3. Subtitle B, Title 2, Health and Safety Code, is |
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76 | 76 | | amended by adding Chapter 36A to read as follows: |
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77 | 77 | | CHAPTER 36A. EARLY VISION SCREENING, IDENTIFICATION, AND REFERRAL |
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78 | 78 | | FOR YOUNG CHILDREN WITH VISUAL IMPAIRMENTS |
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79 | 79 | | SUBCHAPTER A. GENERAL PROVISIONS |
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80 | 80 | | Sec. 36A.001. DEFINITIONS. In this chapter: |
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81 | 81 | | (1) "Agency" means the Texas Education Agency. |
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82 | 82 | | (2) "Certified orientation and mobility specialist" |
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83 | 83 | | means an individual who satisfies agency established requirements |
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84 | 84 | | and holds a certification issued by the Academy for Certification |
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85 | 85 | | of Vision Rehabilitation and Education Professionals. |
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86 | 86 | | (3) "Certified teacher" means a teacher who teaches |
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87 | 87 | | students with visual impairments and who has: |
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88 | 88 | | (A) a bachelor's degree from an accredited |
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89 | 89 | | university; and |
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90 | 90 | | (B) an initial teaching certification in |
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91 | 91 | | elementary or secondary general or special education. |
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92 | 92 | | (4) "Cortical vision impairment" means a disorder |
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93 | 93 | | caused by damage to areas of the brain that process vision and in |
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94 | 94 | | which the eyes remain healthy but the brain has difficulty |
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95 | 95 | | processing and understanding visual information. |
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96 | 96 | | (5) "Early intervention services" means the early |
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97 | 97 | | intervention services described in Part C, Individuals with |
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98 | 98 | | Disabilities Education Act (20 U.S.C. Sections 1431-1443). |
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99 | 99 | | (6) "Expanded core curriculum" means the set of skills |
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100 | 100 | | and concepts that are provided to children with a visual impairment |
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101 | 101 | | to compensate for visual limitations, specialized instruction, |
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102 | 102 | | including orientation and mobility skills, social interaction |
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103 | 103 | | skills, and independent living skills, and use of assistive |
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104 | 104 | | technology. |
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105 | 105 | | (7) "Functional vision assessment" is an evaluation of |
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106 | 106 | | a child's ability to use vision in daily activities, regardless of |
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107 | 107 | | any formal diagnosis. |
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108 | 108 | | (8) "Health care provider" means an individual or |
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109 | 109 | | facility licensed, certified, or otherwise authorized to |
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110 | 110 | | administer health care, for profit or otherwise, in the ordinary |
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111 | 111 | | course of business or professional practice, including a physician |
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112 | 112 | | or a hospital or birthing center. |
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113 | 113 | | (9) "Local education agency" means a school district |
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114 | 114 | | or an open-enrollment charter school. |
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115 | 115 | | (10) "Newborn" means a child less than 30 days old. |
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116 | 116 | | (11) "Physician" means a person licensed to practice |
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117 | 117 | | medicine in this state under Subtitle B, Title 3, Occupations Code. |
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118 | 118 | | (12) "Risk factors" means criteria or factors |
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119 | 119 | | identifying an infant or child as susceptible to a visual |
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120 | 120 | | impairment, including: |
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121 | 121 | | (A) a premature birth of less than 32 weeks; |
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122 | 122 | | (B) in vitro alcohol or substance abuse; |
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123 | 123 | | (C) birth complications; |
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124 | 124 | | (D) congenital infections; |
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125 | 125 | | (E) a history of a neurological disorder; |
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126 | 126 | | (F) a diagnosis of a seizure disorder, cerebral |
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127 | 127 | | palsy, intrauterine stroke, hydrocephalus, cerebral dysplasia such |
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128 | 128 | | as schizencephaly, cranial dysplasia such as Apert syndrome, |
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129 | 129 | | meningitis, encephalitis, a brain tumor, or a traumatic brain |
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130 | 130 | | injury; |
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131 | 131 | | (G) a genetic predisposition, including rare |
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132 | 132 | | chromosomal abnormalities; |
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133 | 133 | | (H) a family history of congenital visual |
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134 | 134 | | impairment or vision loss; |
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135 | 135 | | (I) a family history of autism spectrum disorder |
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136 | 136 | | or a diagnosis of autism spectrum disorder; |
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137 | 137 | | (J) a history of metabolic disorders, including |
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138 | 138 | | hypoglycemia, methylmalonic acidemia or propionic acidemia, Refsum |
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139 | 139 | | disease, mucopolysaccharidosis, neuronal ceroid lipofuscinosis, |
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140 | 140 | | disorders of glycosylation, or Tay-Sachs disease; |
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141 | 141 | | (K) a history of malnourishment, sensory |
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142 | 142 | | processing disorder, or malabsorption syndromes; or |
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143 | 143 | | (L) parent or caregiver concerns regarding |
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144 | 144 | | developmental vision delays. |
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145 | 145 | | (13) "Screening" means a test or battery of tests |
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146 | 146 | | administered to rapidly determine the need for a professional |
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147 | 147 | | examination. |
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148 | 148 | | (14) "Visual impairment" means a loss of vision |
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149 | 149 | | resulting from a disorder of the ocular system or disorder of the |
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150 | 150 | | visual pathways and visual centers in the brain, including the |
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151 | 151 | | pathways serving visual perception, cognition, and visual guidance |
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152 | 152 | | of movement of any type or degree. |
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153 | 153 | | Sec. 36A.002. RULES. The executive commissioner may adopt |
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154 | 154 | | rules to implement this chapter. |
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155 | 155 | | SUBCHAPTER B. SCREENING, EVALUATION, AND REFERRAL SERVICES |
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156 | 156 | | Sec. 36A.051. SUSCEPTIBILITY QUESTIONNAIRE. (a) The |
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157 | 157 | | department shall develop a susceptibility questionnaire based on |
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158 | 158 | | the risk factors indicating potential visual impairment in infants |
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159 | 159 | | and provide the questionnaire to hospitals and other birthing |
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160 | 160 | | facilities. |
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161 | 161 | | (b) The executive commissioner by rule shall require a |
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162 | 162 | | physician attending a newborn or another health care provider |
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163 | 163 | | attending the delivery of the newborn to: |
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164 | 164 | | (1) complete and submit the susceptibility |
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165 | 165 | | questionnaire to the department before the physician or health care |
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166 | 166 | | provider may discharge the newborn from the hospital or birthing |
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167 | 167 | | facility; and |
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168 | 168 | | (2) provide a copy of the completed susceptibility |
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169 | 169 | | questionnaire to the newborn's parent, legal guardian, or managing |
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170 | 170 | | conservator and, if known, the newborn's primary care physician and |
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171 | 171 | | vision service provider. |
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172 | 172 | | (c) The department shall record the information provided in |
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173 | 173 | | the completed susceptibility questionnaire in the database |
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174 | 174 | | established under Subchapter C and report the data to the |
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175 | 175 | | commission and applicable local education agency. |
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176 | 176 | | Sec. 36A.052. SCREENING AND REFERRAL. (a) The executive |
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177 | 177 | | commissioner by rule shall require screening of newborns and |
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178 | 178 | | infants born in this state at regular intervals within the first 36 |
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179 | 179 | | months of life to detect visual impairment that is based on ocular |
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180 | 180 | | and neurological disorders, including cortical vision impairment. |
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181 | 181 | | (b) The rules must require: |
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182 | 182 | | (1) health care providers to conduct vision screenings |
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183 | 183 | | at well-child visits when the child is 3 months, 6 months, 12 |
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184 | 184 | | months, 24 months, 30 months, and 36 months of age; |
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185 | 185 | | (2) a health care provider attending a newborn to |
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186 | 186 | | conduct a vision screening for a newborn who exhibits a risk factor; |
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187 | 187 | | and |
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188 | 188 | | (3) a health care provider to conduct a vision |
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189 | 189 | | screening focused on identifying neurological visual impairments, |
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190 | 190 | | including cortical vision impairment, and refer for a functional |
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191 | 191 | | vision assessment and learning media assessment any child younger |
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192 | 192 | | than five years of age who exhibits a risk factor, regardless of |
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193 | 193 | | whether the child received a formal diagnosis of a visual |
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194 | 194 | | impairment. |
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195 | 195 | | (c) A health care provider who conducts a screening under |
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196 | 196 | | Subsection (b) and detects a visual impairment or an indication of |
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197 | 197 | | associated risk factors shall: |
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198 | 198 | | (1) refer the child's parent, legal guardian, or |
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199 | 199 | | managing conservator to the applicable local education agency for |
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200 | 200 | | early intervention services, including a functional vision |
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201 | 201 | | assessment; and |
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202 | 202 | | (2) provide the child's parent, legal guardian, or |
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203 | 203 | | managing conservator with information on locations at which the |
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204 | 204 | | child may receive a medical follow-up for a formal diagnosis. |
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205 | 205 | | (d) As soon as practicable after receiving a referral, the |
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206 | 206 | | local education agency shall conduct a functional vision assessment |
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207 | 207 | | and provide any applicable early intervention services. |
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208 | 208 | | Sec. 36A.053. FUNCTIONAL VISION ASSESSMENT. (a) A parent, |
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209 | 209 | | legal guardian, managing conservator, or health care provider may |
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210 | 210 | | request a local education agency to conduct a functional vision |
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211 | 211 | | assessment if a routine vision screening or other evaluation |
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212 | 212 | | indicates a potential visual impairment. |
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213 | 213 | | (b) If a susceptibility questionnaire completed under |
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214 | 214 | | Section 36A.051 indicates a child has a risk factor or a screening |
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215 | 215 | | conducted under Section 36A.052 indicates a child may have a visual |
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216 | 216 | | impairment, the applicable local education agency shall conduct a |
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217 | 217 | | functional vision assessment for the child as soon as practicable. |
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218 | 218 | | The local education agency shall provide the child's parent, legal |
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219 | 219 | | guardian, or managing conservator with written information on |
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220 | 220 | | locations at which the assessment may be performed. |
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221 | 221 | | (c) A functional vision assessment must assess the manner in |
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222 | 222 | | which the child uses vision to perform tasks in daily life |
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223 | 223 | | activities by considering both ocular and neurological factors that |
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224 | 224 | | may impact vision, including a cortical vision impairment. |
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225 | 225 | | (d) A certified teacher, certified orientation and mobility |
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226 | 226 | | specialist, health care provider, or local education agency that |
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227 | 227 | | conducts a functional vision assessment indicating a child has a |
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228 | 228 | | visual impairment or does not sufficiently use vision to |
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229 | 229 | | appropriately access developmental or educational materials or |
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230 | 230 | | settings shall inform the child's parent, legal guardian, or |
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231 | 231 | | managing conservator the child may be eligible, regardless of a |
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232 | 232 | | formal diagnosis, under the Individuals with Disabilities |
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233 | 233 | | Education Act (20 U.S.C. Section 1400 et seq.) to receive early |
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234 | 234 | | intervention services from the applicable local education agency, |
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235 | 235 | | including access to an expanded core curriculum. |
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236 | 236 | | Sec. 36A.054. REFERRAL FOR DIAGNOSTIC SERVICES. A |
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237 | 237 | | certified teacher, certified orientation and mobility specialist, |
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238 | 238 | | health care provider, or local education agency that conducts a |
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239 | 239 | | vision screening or functional vision assessment and determines a |
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240 | 240 | | child may have a visual impairment shall use the database developed |
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241 | 241 | | under Subchapter C and refer the child to: |
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242 | 242 | | (1) a pediatric ophthalmologist, optometrist, or |
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243 | 243 | | pediatric neurologist, as appropriate; |
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244 | 244 | | (2) the applicable local education agency for a |
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245 | 245 | | functional vision assessment and learning media assessment if those |
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246 | 246 | | assessments have not been conducted; and |
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247 | 247 | | (3) the Blind Children's Vocational Discovery and |
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248 | 248 | | Development Program administered by the commission for further |
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249 | 249 | | support and services. |
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250 | 250 | | Sec. 36A.055. EARLY INTERVENTION SERVICES. (a) The |
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251 | 251 | | department, commission, and agency and local education agencies |
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252 | 252 | | shall coordinate to ensure certified teachers, certified |
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253 | 253 | | orientation and mobility specialists, health care providers, and |
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254 | 254 | | local education agencies that detect or diagnose a child with a |
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255 | 255 | | visual impairment, regardless of the child's age, provide |
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256 | 256 | | information on and refer the child to: |
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257 | 257 | | (1) the Division for Early Childhood Intervention |
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258 | 258 | | Services of the commission; |
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259 | 259 | | (2) the applicable local education agency responsible |
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260 | 260 | | for delivering early intervention services; and |
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261 | 261 | | (3) any other appropriate services the department |
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262 | 262 | | requires or recommends. |
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263 | 263 | | (b) The department, commission, and agency and local |
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264 | 264 | | education agencies shall coordinate to ensure a child who is |
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265 | 265 | | determined to have a visual impairment through a screening, |
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266 | 266 | | diagnosis, or functional vision assessment receives all |
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267 | 267 | | appropriate early intervention services, including instruction in |
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268 | 268 | | all areas of the expanded core curriculum. |
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269 | 269 | | SUBCHAPTER C. STATE AGENCY POWERS AND DUTIES |
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270 | 270 | | Sec. 36A.101. EDUCATIONAL MATERIALS. (a) The department |
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271 | 271 | | shall develop written educational materials on visual impairments |
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272 | 272 | | under this chapter. The materials shall include information on: |
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273 | 273 | | (1) visual impairments; |
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274 | 274 | | (2) the risk factors associated with visual |
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275 | 275 | | impairments; |
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276 | 276 | | (3) vision screening requirements; |
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277 | 277 | | (4) early intervention services provided by local |
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278 | 278 | | education agencies; |
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279 | 279 | | (5) referral and reporting requirements; and |
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280 | 280 | | (6) any other material the department considers |
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281 | 281 | | necessary. |
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282 | 282 | | (b) The department shall provide the materials developed |
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283 | 283 | | under this section to hospitals, birthing facilities, and primary |
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284 | 284 | | care providers and require a health care provider to provide a copy |
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285 | 285 | | of the materials to the parent, legal guardian, or managing |
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286 | 286 | | conservator of a newborn. |
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287 | 287 | | (c) The department in collaboration with the agency shall |
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288 | 288 | | develop a plan to coordinate early intervention services for |
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289 | 289 | | children who are identified with risk factors or diagnosed with a |
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290 | 290 | | visual impairment. The department and agency may not require a |
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291 | 291 | | formal diagnosis of a visual impairment before a child is eligible |
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292 | 292 | | for early intervention services. |
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293 | 293 | | Sec. 36A.102. TRAINING. (a) The department, in |
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294 | 294 | | collaboration with medical schools and other health care |
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295 | 295 | | organizations, shall develop a training program for health care |
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296 | 296 | | providers to ensure knowledge of and provide necessary skills for |
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297 | 297 | | detecting visual impairments and associated risk factors, with a |
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298 | 298 | | focus on both ocular and neurological forms of visual impairment. |
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299 | 299 | | (b) Health care providers and certified teachers shall |
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300 | 300 | | complete the training course developed under this section to |
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301 | 301 | | identify signs and symptoms of a visual impairment, risk factors, |
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302 | 302 | | or any other indicator that may necessitate a functional vision |
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303 | 303 | | assessment with or without a formal diagnosis. |
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304 | 304 | | Sec. 36A.103. PUBLIC AWARENESS CAMPAIGN. (a) The |
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305 | 305 | | department shall establish a public awareness campaign to educate |
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306 | 306 | | parents, legal guardians, managing conservators, and health care |
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307 | 307 | | providers on: |
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308 | 308 | | (1) types of visual impairments, including cortical |
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309 | 309 | | vision impairment; |
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310 | 310 | | (2) the importance of early screening; |
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311 | 311 | | (3) the developmental history and risk factors |
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312 | 312 | | associated with visual impairment; |
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313 | 313 | | (4) mandatory screening and referral requirements; |
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314 | 314 | | and |
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315 | 315 | | (5) available resources for children with visual |
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316 | 316 | | impairments. |
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317 | 317 | | (b) The department shall provide educational materials and |
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318 | 318 | | support for parents, legal guardians, and managing conservators, |
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319 | 319 | | including information on methods of advocating for their child's |
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320 | 320 | | needs and navigating the early intervention system specifically |
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321 | 321 | | designed for blind and visually impaired children. |
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322 | 322 | | Sec. 36A.104. STATEWIDE VISION DATABASE; REPORT. (a) To |
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323 | 323 | | ensure children with visual impairments receive timely diagnosis |
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324 | 324 | | and treatment, the department shall establish and maintain a secure |
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325 | 325 | | statewide database to monitor and track children who have a risk |
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326 | 326 | | factor for or are diagnosed with a visual impairment. The database |
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327 | 327 | | must track and record: |
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328 | 328 | | (1) screening and functional assessment outcomes, |
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329 | 329 | | including: |
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330 | 330 | | (A) the number of children screened; and |
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331 | 331 | | (B) the number of children diagnosed with or |
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332 | 332 | | identified as having a visual impairment or risk factors; |
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333 | 333 | | (2) diagnostic follow-up appointments; and |
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334 | 334 | | (3) early intervention services provided, including |
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335 | 335 | | the number of children receiving early intervention services for a |
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336 | 336 | | visual impairment. |
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337 | 337 | | (b) Not later than December 1 of each year, the department |
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338 | 338 | | shall provide a written report to the legislature summarizing the |
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339 | 339 | | information collected under Subsection (a) and providing |
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340 | 340 | | recommendations for legislative or other action. |
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341 | 341 | | (c) The report shall include recommendations for improving |
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342 | 342 | | the program's effectiveness, equity, and accessibility. |
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343 | 343 | | Sec. 36A.105. FUNDING. From money appropriated or |
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344 | 344 | | otherwise available for this purpose, the department and commission |
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345 | 345 | | shall allocate money to support the implementation of this chapter. |
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346 | 346 | | Sec. 36A.106. ENFORCEMENT. The department or commission |
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347 | 347 | | may impose an administrative penalty in an amount determined by an |
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348 | 348 | | administrative law judge to be appropriate based on the seriousness |
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349 | 349 | | of the conduct or order a corrective action for a violation of the |
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350 | 350 | | screening and referral requirements under this chapter. |
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351 | 351 | | SECTION 4. As soon as practicable after the effective date |
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352 | 352 | | of this Act, the executive commissioner of the Health and Human |
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353 | 353 | | Services Commission and the Texas Education Agency shall adopt |
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354 | 354 | | rules necessary to implement the changes in law made by this Act. |
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355 | 355 | | SECTION 5. This Act takes effect September 1, 2025. |
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