Texas 2025 - 89th Regular

Texas Senate Bill SR429 Compare Versions

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1		-	SENATE RESOLUTION NO. 429
2		-	WHEREAS, Rett Syndrome Awareness Month is being observed
3		-	in October 2025 to promote better understanding of this
4		-	developmental disorder; and
5		-	WHEREAS, Every two hours, a child is born with Rett
6		-	syndrome, a rare postnatal genetic neurological disorder that
7		-	occurs almost exclusively in females; symptoms first appear in
8		-	infants and toddlers between the ages of 6 to 18 months, followed
9		-	by a period of regression when motor skills are gradually lost
10		-	over time; and
	1	+	89R20687 TBO-D
	2	+	By: Middleton S.R. No. 429
	3	+
	4	+
	5	+
	6	+
	7	+	R E S O L U T I O N
	8	+	WHEREAS, Rett Syndrome Awareness Month is being observed in
	9	+	October 2025 to promote better understanding of this developmental
	10	+	disorder; and
	11	+	WHEREAS, Every two hours, a child is born with Rett syndrome,
	12	+	a rare postnatal genetic neurological disorder that occurs almost
	13	+	exclusively in females; symptoms first appear in infants and
	14	+	toddlers between the ages of 6 to 18 months, followed by a period of
	15	+	regression when motor skills are gradually lost over time; and
11	16		WHEREAS, Individuals with Rett syndrome require assistance
12	17		with daily tasks throughout their lives; more than half of those
13	18		diagnosed with the condition lose their ability to walk, and many
14	19		suffer from impairments such as loss of speech, seizures,
15	20		scoliosis, and irregular breathing patterns; one of the most
16		-	distinctive signs of Rett syndrome is near constant repetitive
17		-	~~hand~~ movements while awake; and
	21	+	distinctive signs of Rett syndrome is near constant repetitive hand
	22	+	movements while awake; and
18	23		WHEREAS, Biomedical research suggests that neurological
19		-	symptoms may be reversed even decades after diagnosis;
20		-	~~scientists~~ discovered the gene that causes Rett syndrome in 1999,
21		-	~~and there~~ have since been several breakthroughs in developing a
22		-	~~cure; the~~ first FDA-approved treatment launched in 2023; and
23		-	WHEREAS, The International Rett Syndrome Foundation is one
24		-	of the world's largest private sources of funds for Rett syndrome
	24	+	symptoms may be reversed even decades after diagnosis; scientists
	25	+	discovered the gene that causes Rett syndrome in 1999, and there
	26	+	have since been several breakthroughs in developing a cure; the
	27	+	first FDA-approved treatment launched in 2023; and
	28	+	WHEREAS, The International Rett Syndrome Foundation is one of
	29	+	the world's largest private sources of funds for Rett syndrome
25	30		research; the organization works to address the full spectrum of
26		-	the disorder while advocating for policies that enhance the
27		-	~~quality~~ of life for patients and their families; and
	31	+	the disorder while advocating for policies that enhance the quality
	32	+	of life for patients and their families; and
28	33		WHEREAS, Rett syndrome is a serious and life-changing
29	34		condition, and Rett Syndrome Awareness Month serves as a means of
30	35		rallying support for vital research and resources that can help
31	36		improve the outlook for those living with the disorder; now,
32	37		therefore, be it
33		-	RESOLVED, That the Senate of the State of Texas, 89th
34		-	Legislature, hereby recognize October 2025 as Rett Syndrome
35		-	Awareness Month and encourage all Texans to learn more about
36		-	the condition.
37		-	Middleton
38		-	________________________________
39		-	President of the Senate
40		-	I hereby certify that the
41		-	above Resolution was adopted by
42		-	the Senate on April 24, 2025.
43		-	________________________________
44		-	Secretary of the Senate
45		-	________________________________
46		-	Member, Texas Senate
	38	+	RESOLVED, That the Senate of the 89th Texas Legislature
	39	+	hereby recognize October 2025 as Rett Syndrome Awareness Month and
	40	+	encourage all Texans to learn more about the condition.