Texas 2025 - 89th Regular

Texas Senate Bill SR429 Latest Draft

Bill / Enrolled Version Filed 04/24/2025

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                            SENATE RESOLUTION NO. 429
 WHEREAS, Rett Syndrome Awareness Month is being observed
 in October 2025 to promote better understanding of this
 developmental disorder; and
 WHEREAS, Every two hours, a child is born with Rett
 syndrome, a rare postnatal genetic neurological disorder that
 occurs almost exclusively in females; symptoms first appear in
 infants and toddlers between the ages of 6 to 18 months, followed
 by a period of regression when motor skills are gradually lost
 over time; and
 WHEREAS, Individuals with Rett syndrome require assistance
 with daily tasks throughout their lives; more than half of those
 diagnosed with the condition lose their ability to walk, and many
 suffer from impairments such as loss of speech, seizures,
 scoliosis, and irregular breathing patterns; one of the most
 distinctive signs of Rett syndrome is near constant repetitive
 hand movements while awake; and
 WHEREAS, Biomedical research suggests that neurological
 symptoms may be reversed even decades after diagnosis;
 scientists discovered the gene that causes Rett syndrome in 1999,
 and there have since been several breakthroughs in developing a
 cure; the first FDA-approved treatment launched in 2023; and
 WHEREAS, The International Rett Syndrome Foundation is one
 of the world's largest private sources of funds for Rett syndrome
 research; the organization works to address the full spectrum of
 the disorder while advocating for policies that enhance the
 quality of life for patients and their families; and
 WHEREAS, Rett syndrome is a serious and life-changing
 condition, and Rett Syndrome Awareness Month serves as a means of
 rallying support for vital research and resources that can help
 improve the outlook for those living with the disorder; now,
 therefore, be it
 RESOLVED, That the Senate of the State of Texas, 89th
 Legislature, hereby recognize October 2025 as Rett Syndrome
 Awareness Month and encourage all Texans to learn more about
 the condition.
 Middleton
  ________________________________
  President of the Senate
  I hereby certify that the
  above Resolution was adopted by
  the Senate on April 24, 2025.
  ________________________________
  Secretary of the Senate
  ________________________________
  Member, Texas Senate