UT
Utah Senate Bill SB0060

Utah 2025 Regular Session

Utah Senate Bill SB0060 Compare Versions

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1-01-30 16:51 1st Sub. (Green) S.B. 60
2-David P. Hinkins proposes the following substitute bill:
1+01-03 14:25 S.B. 60
32 1
43 Newborn Testing Amendments
54 2025 GENERAL SESSION
65 STATE OF UTAH
76 Chief Sponsor: David P. Hinkins
8-House Sponsor:
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108
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1210 LONG TITLE
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1412 General Description:
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1614 This bill amends provisions related to newborn screening.
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1816 Highlighted Provisions:
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2018 This bill:
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2220 ▸ requires the Department of Health and Human Services to screen newborns for pyruvate
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24-dehydrogenase complex deficiency;
22+dehydrogenase complex deficiency; and
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26-▸ amends provisions related to hearing loss testing; and
24+▸ makes technical changes.
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28-▸ makes technical changes.
26+Money Appropriated in this Bill:
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30-Money Appropriated in this Bill:
28+None
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30+Other Special Clauses:
31+14
3232 None
33-14
34-Other Special Clauses:
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36-None
34+Utah Code Sections Affected:
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38-Utah Code Sections Affected:
36+AMENDS:
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40-AMENDS:
38+26B-4-319, as renumbered and amended by Laws of Utah 2023, Chapter 307
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42-26B-4-319, as renumbered and amended by Laws of Utah 2023, Chapter 307
40+
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44-
42+Be it enacted by the Legislature of the state of Utah:
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46-Be it enacted by the Legislature of the state of Utah:
44+Section 1. Section 26B-4-319 is amended to read:
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48-Section 1. Section 26B-4-319 is amended to read:
46+26B-4-319 . Testing of newborn infants.
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50-26B-4-319 . Testing of newborn infants.
48+(1) Except in the case where parents object on the grounds that they are members of a
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52-(1) Except in the case where parents object on the grounds that they are members of a
50+specified, well-recognized religious organization whose teachings are contrary to the
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54-specified, well-recognized religious organization whose teachings are contrary to the
52+tests required by this section, a newborn infant shall be tested for:
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56-tests required by this section, a newborn infant shall be tested for:
54+(a) phenylketonuria (PKU);
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58-(a) phenylketonuria (PKU);
56+(b) pyruvate dehydrogenase complex deficiency (PDCD);
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60-(b) pyruvate dehydrogenase complex deficiency (PDCD) if there is:
58+[(b)] (c) other heritable disorders which may result in an intellectual or physical disability
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62-(i) a preventative measure or treatment available; and
60+or death and for which:
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64-(ii) a reliable laboratory diagnostic test method;
65-1st Sub. S.B. 60 1st Sub. (Green) S.B. 60 01-30 16:51
62+(i) a preventive measure or treatment is available; and
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67-[(b)] (c) other heritable disorders which may result in an intellectual or physical disability
64+(ii) there exists a reliable laboratory diagnostic test method;
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69-or death and for which:
66+(d) hearing loss if the infant was born in any setting, including a hospital, where 100 or S.B. 60 01-03 14:25
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71-(i) a preventive measure or treatment is available; and
68+more live births occur annually; and
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73-(ii) there exists a reliable laboratory diagnostic test method;
70+[(c)(i) an infant born in a hospital with 100 or more live births annually, hearing
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75-(d) hearing loss; and
72+loss; and]
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77-[(c)(i) an infant born in a hospital with 100 or more live births annually, hearing
74+[(ii) an infant born in a setting other than a hospital with 100 or more live births
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79-loss; and]
76+annually, hearing loss; and]
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81-[(ii) an infant born in a setting other than a hospital with 100 or more live births
78+[(d)] (e) critical congenital heart defects using pulse oximetry.
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83-annually, hearing loss; and]
80+(2) In accordance with Section 26B-1-209, the department may charge fees for:
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85-[(d)] (e) critical congenital heart defects using pulse oximetry.
82+(a) materials supplied by the department to conduct tests required under Subsection (1);
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87-(2) In accordance with Section 26B-1-209, the department may charge fees for:
84+(b) tests required under Subsection (1) conducted by the department;
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89-(a) materials supplied by the department to conduct tests required under Subsection (1);
86+(c) laboratory analyses by the department of tests conducted under Subsection (1); and
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91-(b) tests required under Subsection (1) conducted by the department;
88+(d) the administrative cost of follow-up contacts with the parents or guardians of tested
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93-(c) laboratory analyses by the department of tests conducted under Subsection (1); and
90+infants.
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95-(d) the administrative cost of follow-up contacts with the parents or guardians of tested
92+(3) Tests for hearing loss described in Subsection (1) shall be based on one or more
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97-infants.
94+methods approved by the Newborn Hearing Screening Committee created in Section
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99-(3) Tests for hearing loss described in Subsection (1) shall be based on one or more
96+26B-1-432, including:
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101-methods approved by the Newborn Hearing Screening Committee created in Section
98+(a) auditory brainstem response;
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103-26B-1-432, including:
100+(b) automated auditory brainstem response; and
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105-(a) auditory brainstem response;
102+(c) evoked otoacoustic emissions.
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107-(b) automated auditory brainstem response; and
104+(4) Results of tests for hearing loss described in Subsection (1) shall be reported to:
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109-(c) evoked otoacoustic emissions.
106+(a) the department; and
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111-(4) Results of tests for hearing loss described in Subsection (1) shall be reported to:
108+(b) when results of tests for hearing loss under Subsection (1) suggest that additional
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113-(a) the department; and
110+diagnostic procedures or medical interventions are necessary:
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115-(b) when results of tests for hearing loss under Subsection (1) suggest that additional
112+(i) a parent or guardian of the infant;
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117-diagnostic procedures or medical interventions are necessary:
114+(ii) an early intervention program administered by the department in accordance with
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119-(i) a parent or guardian of the infant;
116+Part C of the Individuals with Disabilities Education Act, 20 U.S.C. Sec. 1431 et
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121-(ii) an early intervention program administered by the department in accordance with
118+seq.; and
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123-Part C of the Individuals with Disabilities Education Act, 20 U.S.C. Sec. 1431 et
120+(iii) the Utah Schools for the Deaf and the Blind, created in Section 53E-8-201.
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125-seq.; and
122+Section 2. Effective Date.
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127-(iii) the Utah Schools for the Deaf and the Blind, created in Section 53E-8-201.
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129-Section 2. Effective Date.
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131124 This bill takes effect on May 7, 2025.
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