01-30 16:51 1st Sub. (Green) S.B. 60
David P. Hinkins proposes the following substitute bill:
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Newborn Testing Amendments
2025 GENERAL SESSION
STATE OF UTAH
Chief Sponsor: David P. Hinkins
House Sponsor:
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LONG TITLE
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General Description:
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This bill amends provisions related to newborn screening.
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Highlighted Provisions:
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This bill:
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▸ requires the Department of Health and Human Services to screen newborns for pyruvate
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dehydrogenase complex deficiency;
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▸ amends provisions related to hearing loss testing; and
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▸ makes technical changes.
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Money Appropriated in this Bill:
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None
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Other Special Clauses:
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None
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Utah Code Sections Affected:
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AMENDS:
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26B-4-319, as renumbered and amended by Laws of Utah 2023, Chapter 307
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Be it enacted by the Legislature of the state of Utah:
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Section 1. Section 26B-4-319 is amended to read:
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26B-4-319 . Testing of newborn infants.
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(1) Except in the case where parents object on the grounds that they are members of a
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specified, well-recognized religious organization whose teachings are contrary to the
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tests required by this section, a newborn infant shall be tested for:
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(a) phenylketonuria (PKU);
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(b) pyruvate dehydrogenase complex deficiency (PDCD) if there is:
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(i) a preventative measure or treatment available; and
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(ii) a reliable laboratory diagnostic test method;
1st Sub. S.B. 60 1st Sub. (Green) S.B. 60 01-30 16:51
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[(b)] (c) other heritable disorders which may result in an intellectual or physical disability
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or death and for which:
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(i) a preventive measure or treatment is available; and
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(ii) there exists a reliable laboratory diagnostic test method;
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(d) hearing loss; and
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[(c)(i) an infant born in a hospital with 100 or more live births annually, hearing
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loss; and]
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[(ii) an infant born in a setting other than a hospital with 100 or more live births
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annually, hearing loss; and]
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[(d)] (e) critical congenital heart defects using pulse oximetry.
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(2) In accordance with Section 26B-1-209, the department may charge fees for:
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(a) materials supplied by the department to conduct tests required under Subsection (1);
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(b) tests required under Subsection (1) conducted by the department;
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(c) laboratory analyses by the department of tests conducted under Subsection (1); and
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(d) the administrative cost of follow-up contacts with the parents or guardians of tested
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infants.
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(3) Tests for hearing loss described in Subsection (1) shall be based on one or more
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methods approved by the Newborn Hearing Screening Committee created in Section
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26B-1-432, including:
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(a) auditory brainstem response;
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(b) automated auditory brainstem response; and
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(c) evoked otoacoustic emissions.
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(4) Results of tests for hearing loss described in Subsection (1) shall be reported to:
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(a) the department; and
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(b) when results of tests for hearing loss under Subsection (1) suggest that additional
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diagnostic procedures or medical interventions are necessary:
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(i) a parent or guardian of the infant;
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(ii) an early intervention program administered by the department in accordance with
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Part C of the Individuals with Disabilities Education Act, 20 U.S.C. Sec. 1431 et
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seq.; and
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(iii) the Utah Schools for the Deaf and the Blind, created in Section 53E-8-201.
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Section 2. Effective Date.
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This bill takes effect on May 7, 2025.
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