Old | New | Differences | |
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1 | 1 | 2025 SESSION | |
2 | 2 | ||
3 | - | ENROLLED | |
3 | + | INTRODUCED | |
4 | + | ||
5 | + | 25100059D | |
4 | 6 | ||
5 | 7 | HOUSE JOINT RESOLUTION NO. 499 | |
6 | 8 | ||
9 | + | Offered January 16, 2025 | |
10 | + | ||
7 | 11 | Designating February 28, in 2025 and in each succeeding year, as Krabbe Disease Awareness Day in Virginia. | |
8 | 12 | ||
9 | - | Agreed to by the House of Delegates, February 3, 2025 | |
10 | 13 | ||
11 | - | Agreed to by the Senate, February 18, 2025 | |
14 | + | ||
15 | + | PatronGreen | |
16 | + | ||
17 | + | ||
18 | + | ||
19 | + | Committee Referral Pending | |
12 | 20 | ||
13 | 21 | ||
14 | 22 | ||
15 | 23 | WHEREAS, according to the National Institutes of Health, Krabbe Disease is a rare lysosomal storage disorder that occurs in at least one in every 250,000 live births; and | |
16 | 24 | ||
17 | 25 | WHEREAS, a diagnosis of infantile Krabbe Disease has a mortality rate as high as 90 percent in the first two years of life; and | |
18 | 26 | ||
19 | 27 | WHEREAS, the disease is usually fatal and has a multitude of complications that debilitate the patient, including deafness, vision loss, rigid posture, and cognitive deterioration; and | |
20 | 28 | ||
21 | 29 | WHEREAS, more research is needed to determine better treatment options for patients suffering from Krabbe Disease; now, therefore, be it | |
22 | 30 | ||
23 | 31 | RESOLVED by the House of Delegates, the Senate concurring, That the General Assembly designate February 28, in 2025 and in each succeeding year, as Krabbe Disease Awareness Day in Virginia; and, be it | |
24 | 32 | ||
25 | 33 | RESOLVED FURTHER, That the Clerk of the House of Delegates post the designation of this day on the General Assembly's website. |