Virginia 2025 Regular Session

Virginia House Bill HJR499 Compare Versions

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11 2025 SESSION
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57 HOUSE JOINT RESOLUTION NO. 499
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9+Offered January 16, 2025
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711 Designating February 28, in 2025 and in each succeeding year, as Krabbe Disease Awareness Day in Virginia.
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9-Agreed to by the House of Delegates, February 3, 2025
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11-Agreed to by the Senate, February 18, 2025
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1523 WHEREAS, according to the National Institutes of Health, Krabbe Disease is a rare lysosomal storage disorder that occurs in at least one in every 250,000 live births; and
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1725 WHEREAS, a diagnosis of infantile Krabbe Disease has a mortality rate as high as 90 percent in the first two years of life; and
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1927 WHEREAS, the disease is usually fatal and has a multitude of complications that debilitate the patient, including deafness, vision loss, rigid posture, and cognitive deterioration; and
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2129 WHEREAS, more research is needed to determine better treatment options for patients suffering from Krabbe Disease; now, therefore, be it
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2331 RESOLVED by the House of Delegates, the Senate concurring, That the General Assembly designate February 28, in 2025 and in each succeeding year, as Krabbe Disease Awareness Day in Virginia; and, be it
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2533 RESOLVED FURTHER, That the Clerk of the House of Delegates post the designation of this day on the General Assembly's website.